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| | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Great work, Brian. So glad to have you in our corner. Thank you.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: May 2012 Posts: 162 Likes: 1 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2012 Posts: 162 Likes: 1 | Thank you for the info Brian. Vince has his 18 mom post tx scan/check up coming up next week, will mention this during the visit.
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
| | | | | Joined: Feb 2014 Posts: 8 Member | | Member
Joined: Feb 2014 Posts: 8 | My husband had a kidney transplant in 1989. The new kidney was placed in his groin area. The old kidneys were left in place. He had his treatments in August & September of 2007. In March of 2008 a Pet Scan showed cancer on one of the old/native kidneys. He had the kidney with the tumor removed without any follow-up treatment as it was all contained. The doctors told him the cancers were unrelated - he was just unlucky enough to have two different kinds of cancer in the same year. Not really sure where his oral cancer came from - Doctors thought maybe a mix of his previous chewing (he never smoked) and the cyclosporine/neoral anti-rejection medicine. We were just so thankful his transplanted kidney made it through the treatments ok. But this is something to keep an eye on. Maybe there are others??
Wife Of Ted age 59
Non-smoker,
dx 07/2007 cancer in tonsil cavity
40 rad tx Last rad 9/28/07
8 chemo weekly - Erbitux & Alimta
dx 03/2008 native kidney tumor cancer
03/2008 kidney removed,
11/2013 Esophageal Dilation
12/2013 Aspiration Pneumonia
01/2014 Aspiration Pneumonia
01/2014 - G Tube - Nothing more by mouth
05/2014 - Aspiration Pneumonia & Sepsis
05/2014 & 06/2014 - Esophageal Dilation
06/2014 - Aspiration Pneumonia
08/2014 - 30 HBO Dives
10/2014 - All teeth extracted
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