| | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi. I don't post on here very often but I check in here almost daily since John was diagnosed 5 years ago. I can't believe that 5 years ago this month we started on this journey. Life is better than ever and John and I both feel so blessed to be living each day to the fullest. We watched our baby girl get married 9-14-12 to her high school sweetheart and boyfriend of 12 years and our son will be getting married 9-12-14 to an amazing girl. John's cancer diagnosis brought us closer together as a couple and for that I am so grateful.
John tends to keep things to himself and not tell me about "issues" until he thinks there is something to "bother" me with. This has always been a problem between us but I do know why he does it. John went to the family doctor last week without telling me because he has been having unusual chest pain. The doctor did an EKG which was normal and checked him out. His BP was normal. He gave John a script for blood work and a chest x-ray. He told John if things didn't resolve to get the chest x-ray done. This has been going on for the past month so John is going tomorrow to get the x-ray.
The doctor also told John not to be too concerned because the type of cancer John had if it comes back goes to the original site and not the lungs. (me rolling my eyes)
I don't know a lot about recurrence when patients are this far out of treatments but I assume it can go to the lungs?
John hasn't had a CT or PET Scan since June, 2011. Praying this is nothing and will keep you updated. Thanks for listening.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Hi, Wanda,
I know how hard this is! Try not to get ahead of yourself right now. Relax and take a few deep breaths. Keep busy this weekend so you can chase away the worries. There isn't a lot you can do until you know what is going on. And remember, it could be nothing, or it could be something that's unrelated to cancer. If you need a shoulder, call me. It's good that you posted. You have a lot of friends here who understand.
Best�
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Hi, Wanda,
I know how hard this is! Try not to get ahead of yourself right now. Take a few deep breaths and keep busy this weekend to chase away the worries. Remember, it may not be anything, or it could be something not related to cancer. Good thing that you posted...you have a lot of friends here who understand. If you need a shoulder, call me.
Best�
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Wanda,
I have tried twice to respond to your post. I may send you a PM if this one does not make it.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Hi, Wanda,
I know how hard this is. Try not to get ahead of yourself right now. Keep busy this weekend so that you can chase away the worries. Remember, it may be nothing, or it may be something not related to cancer. Good thing you posted here. You have lots of friends here who understand what you are going through. If you need a shoulder, call me.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Yay, it worked. One clue. Do not use any punctuation other than commas and periods. Also, no dashes, I LOVE my dashes, too.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | We have heard from the software developer, and they believe that we will have an upgrade in our hands in about 1-2 weeks. So assuming that they get the bug fix right, we should be able to put this irritating bit of software malfunction behind us for good.
The board ran fine for years until the standard for server software made a major technological leap that enabled them to run faster. Many programs were slow to upgrade to meet the new server protocol standards. They ran the risk of becoming dinosaurs if they didn't do the work. Smaller less well funded companies, took the longest to respond to the industry standard change.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Wanda, I know this is scary.
He could well have angina. This often does not show on an ECG, or on a blood test. To really diagnose " coronary insufficiency " or a lack of blood supplying the coronary muscles, he may well need an Exercise tolerance test. Does he get these chest pains with any exertion? Do they go away with rest?
I'm not saying that this is the cause of his chest pains but it sure could be, rather than any tumours in the lungs. Just another possibility.
Do try not to borrow.............from tomorrow.
Thinking of you,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Wanda, you never know what it is. After going thru OC you just never know. Its always better to get things checked out to be sure of what you are dealing with. The xray may not show what the issue is so dont be surprised if more tests are scheduled. Dont let John ignore this, keep looking until you find out what is going on.
Hope it turns out to be nothing serious. Best wishes with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Well the blood work and chest x-ray were normal. John said he might call the Radiation Oncologist tomorrow and see what he thinks and if he wants him to get a CT Scan. John said it really isn't "pain" but more "discomfort". He hasn't had any CT Scans or PET Scans since June 2011. He really doesn't want any more radiation in his body.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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