Previous Thread
Next Thread
Print Thread
Page 2 of 3 1 2 3
klr #174977 12-07-2013 06:17 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
A few years ago, I was told the shot was only available to over 60. The cost then was $200-$300 which puts it out of my price range.

I will make an appointment in about 2 weeks with my family doc and find out what the real scoop is. Im sick with something else right now so once Im well again I will go and post the info.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
klr #174989 12-07-2013 12:00 PM
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
Check how long it is effective. That is one problem with the chicken pox vax. It wears off, and then the immunuzed are at risk again, only older when it is harder to handle. A mild shingles may be preferable. (I stress MAY be. I got lucky with mine.) Anyway, something else to ask. And does it help those who have already had an outbreak? And is it one of those that makes you temporarily contagious to those who did not have chicken pox? (Live virus types. With my shingles, I had to avoid my pregnant friend because you are chicken pox contagious.)


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
klr #174991 12-07-2013 12:35 PM
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
I just quickly looked into it with Dr. Google, and Medicare does cover the shingles vaccine as part of their preventive services, but is covered under part "D", the prescription drug plan, so you would need that, and pays for the doctor or other person for giving the vaccine, and co-pays apply. Part "A" or "B" doesn't pay for the shingles vaccine, so your doctor would have yo be able to bill under Part D or send you to a pharmacy accepting medicare Part D. If you go to one that is not, you may be responsible for the entire bill, maybe get reimbursed. I did not see a minimum age requirement, but the CDC recommends anyone over the age of 60 getting the vaccine, which is different than Medicare paying. I guess calling Medicare, your Part D provider, is the best thing.

If you already had shingles, the vaccine may lessen the severity.

Shingles is not contagious per say. If exposed by direct contact, when the blisters are open, they may get chicken pox, not shingles, as Kristen mentioned.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






klr #175001 12-07-2013 07:04 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Thanks for the info Paul!

My daughter is having my first grandchild next spring, so I need to get the whooping cough vaccine and I still need the flu shot. But until I am well, I have to hold off getting all those vaccines. Its going to be at least another week before I go, but it definitely will be this year so it goes under the 2013 insurance co-pays. I will find out what I can and post. Now heres another thought to throw into the mix.... would the Shingles vaccine info vary from state to state?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #175003 12-07-2013 07:26 PM
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Christine, as far as Medicare, I don't think it will vary state to state, being it's Federal, but good question.

I received the flu vaccine when hospitalized for surgery in October, and read previously you should not receive any vaccines a month before, during, shortly after chemo treatment due to possibly effecting the immune system, and having adverse reactions. I didn't know this in 2009, and was given the flu, and pneumonia vaccine during treatment, and had adverse effects. Last year, it was just the flu shot during chemo. I guess all chemo's are different, and everyone should check with their doctor, if not sure. With Carboplatin it says the same, no vaccines.



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






klr #175005 12-07-2013 08:30 PM
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
This is good to know, just in case chemo ends up being on our list. We avoid vaxes when we can (had bad reaction issues in my kids) but as we homeschool, we usually manage to avoid flu germs as well because we are home so much. We will be heading right into germ season when/if we start further treatments.

You guys know so MUCH stuff!


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
klr #176206 01-07-2014 09:47 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
I'm not so sure it's common in cancer patients. I had shingles numerous times pre cancer and surprisingly it didn't reappear during or after treatment. It's another one of those virus mystery things. It prefers weakened immune systems. The treatment I had beat the snot out of me - I lost over 61 lbs. See:http://www.nlm.nih.gov/medlineplus/tutorials/shingles/id349104.pdf


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
klr #177050 01-29-2014 11:48 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
I finally went to my doc who said it may or may not be covered by medicare. Yes, Gary it is common for those with a suppressed immune system to get shingles. My doc advised me to get the vaccine as my immune system is not at all what it should be. He suggested I call Medicare and ask if the shot is covered and where I should go to get it. Here in PA (not sure if its like this everywhere) the shingles vaccine may be given at either a participating pharmacy or in the doctors office to people age 50 or older. It depends on the location where you would get the shot if your insurance will cover it. It is now a minimum age of 50 years old to get the shingles vaccine.

My local county Dept of Health was giving out shingles vaccines to people age 50 and over who are either underinsured or uninsured for $5. I set up an appointment and will get my shot next week. If anyone wants the shingles vaccine I suggest you call and check with not just your insurance company but also your local county dept of health. You just might get lucky, I did.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
klr #177076 01-30-2014 12:57 AM
Joined: Jan 2013
Posts: 1,292
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,292
Likes: 1
I keep reading most posts on cost and age but I'm still confused on the need for getting the shingles vaccine for cancer survivors. Is the general vote to get vaccinated or not? Of course, I would consult with the doctor but what else besides having had cancer and treatment with chemo is going to put the balance to get the vaccine?


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
klr #177083 01-30-2014 06:14 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Im passing along the info I got from my family doctor. As always.... check with your family doc prior to getting any treatment or vaccine or even drastically changing your diet. I spoke with my family doctor at length about both the shingles vaccine and the country's anti-vaccine movement resulting in the resurgence of previously eradicated diseases.

My doctor advised me knowing my full history to get the shingles vaccine. He said anyone who has had chicken pox, is over 50 with a compromised immune system should get it. Some cancer patients over 50 may have recovered enough to have resumed their former lives, their bodies may not be as fragile as other cancer patients. They may not need the vaccine while others have a more compromised immune system and need the shot. If you check with your family doc, please let me know what they advise.

May years ago, I watched my grandmother suffer with shingles, it eventually landed her in the hospital for a couple weeks. She was so sick! Hospitals are my worst fear, (after spending 2 months stuck there in 2009) so Im getting the shot to hopefully avoid ever experiencing what its like to have shingles. I remember Davidcpa had shingles a few years ago. He is pretty resilient, nothing can keep that guy down for long.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Page 2 of 3 1 2 3

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
chet51, David ATX, K26, Chicoliving, Tash1916
13,231 Registered Users
Forum Statistics
Forums23
Topics18,210
Posts197,045
Members13,231
Most Online614
Jul 29th, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5