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Mary40000 #177157 01-31-2014 08:31 PM
Joined: Apr 2013
Posts: 76
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Apr 2013
Posts: 76
OK--PET done last Saturday after the machine got up and running again--2 spots in hilar lymphs of lungs lit up, as expected. But in addition, there was also a bright spot on a rib. (it didn't show in CT--only in PET). Could be a result of trauma from a month's worth of coughing (due to a HORRIBLE cold). Could be...well, never mind. THen the tumor board reviewed all this and determined that we should do nothing for 2 months and then do another PET. Hopefully the rib thing will fade. There is nothing to biopsy at this point, as the PET/CT does not show any "structural abnormality". That mostly makes sense to me. And we are told that ultimately, there is no harm in waiting two months to spot treat the lymph nodes with rads.


Mary
Caregiver to husband, 60
Dx Sept '12 SCC BOT T2N2aMo, Stage IV, HPV+
Oct '12 Sub.Gland transfer
Nov-Dec '12 IMRT x 33 + cisplatin x7
March '13 PET/CT: 2 spots on lungs; (BOT & neck lymphs NED)
April '13 Biopsy: 1 = malignant right hilar lymph (met from HNSCC)p16
9/13: 33 rounds IMRT to lungs; carboplatinx7
CT w/contrast 12/30/13: 2 spots left hilar lymph. biopsy confirms SCC
30 rounds IMRT to left lung; treatment ended 5/29/14
Sept 2014--CT clear; December 2014 CT clear
Mary40000 #177162 01-31-2014 09:51 PM
Joined: Jan 2013
Posts: 1,294
Likes: 1
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,294
Likes: 1
Thanks for the update Mary. Fighting recurrence is really a tough job but you are a trooper and just keep battling like you have been. Wishing for the best, Don


Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
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