| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Mark,
Just because you have the PEG it doesn't mean you stop eating and swallowing. Quite the contrary, you should ONLY use the PEG when absolutely necessary. You need to continue to use your swallowing muscles at least on a daily basis. There are people that become lifetime dependent on the PEG because of this Tx so don't give your throat one more reason to stop it's normal function.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2013 Posts: 9 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Nov 2013 Posts: 9 | Hello Christine
i am not sure how this works.
If I send you a response to your response to me , will everyone read it?
base of tongue scc 11/02/13
stage 4 hpv16
necrotic lymph-left
CYSPLATIN 2x- unable to tolerate 3rd
RAD35=imrt completed feb 28-2014
70gy
peg -removed -april 2014
bot cancer -not visually evident
lymph node still slightly over sized 1.3 cm no surgery planned
wait for future scan results march2015
terrible digestion for months
inguinal hernia a result?
no appetite most days-
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Mark, if you reply to a private message then it will only go to me (unless others were included in the message). To send me a message click on my name (to the right of this message), you should get a drop down menu, click on send a PM and type your message, then click the send button.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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