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| | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Well, final verdict on about 3 months of once/twice a week acupuncture: zip, zero, zilch. Nice people who mean well but the end result has me feeling no differently from when I started.
Back to the drawing board
(and Ed, I'll look into the ART process after the holidays)
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sorry you didn't get good results. Don't get discouraged and please don't give up. I hope you achieve some success with ART. I have even learned how to treat specific neuropathies when working out based on the ART principles. Ironically I found a workout recovery product that has completely eliminated all the weakened muscle burn after workouts and almost all neuropathies. I even take half a dose when I'm not working out.
Feel free to message me if you need any help selecting a provider. There are little icons next to the provider that shows what certifications they have. Look specific for areas of concern in your body. I know hands, feet, etc., are shown. With complete certification I believe there are 700 specific treatments but I'm not sure which ones are specific to nerves vs muscles.
Also, City of Hope has been really going after STAR certification for aftercare which helps assemble a multidisciplinary team designed to specifically address after treatment issues. Your issues should fall under that.
Good luck David!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Thanks, Ed. I really appreciate your support and advice.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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