| Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Andrew,
The old Biotene gel was the bomb. An old OCF member from a decade ago used the gel for scuba diving. He insisted slathering that stuff on made the dry tank air and underwater experience unchanged from before surgery and chemorads. The ProVantage gel is a different approach. It only takes a small amount and you spit it out while it settles in vs putting it all over the inside of the mouth.
For me, ProVantage generates a lot more "bubbly" aerated saliva. I have completely lost the ability to secret saliva from my left parotid. It just swells up and I spend a lot of time throughout the day squeezing the nerve that goes through the salivary gland to empty it so I reduce chances of infection. I use the product every time I brush plus I suck on xylitol candy through the day.
PerioSciences offered a 50% discount a while back for oral cancer survivors just for their small travel size (Chapstick size) for $12. You can check out their website and the hydrating products. I am involved in a study of theirs through my dental oncologist who is also a big supporter of OCF. He will be speaking at an upcoming OCF walk.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Thanks for the tip Ed, PM me and tell me how you escaped from hospice!
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2008 Posts: 117 Likes: 1 | Thanks for the heads up about the biotene formula change. I had to stop using the spray because it burned. I have some gel toothpaste, some PBF mouthwash, and oral balance gel and I don't feel any change. Perhaps they are the old formulas (I tend to stock up). I'll have to look more closely.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Apr 2008 Posts: 117 Likes: 1 | I just took a look at my Biotene Oral Balance Gel. The tube I'm using says "Contains protein enzyme system..." but the two I bought after that (still in the closet) don't. They say "New improved pH balance." Which means they dropped the enzymes.
This is very disappointing. When I first started using dry mouth products I tried just about every product I could find, and only the Biotene ones worked. Some of the others actually made my mouth dryer after the initial few minutes.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
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