| | Joined: Sep 2013 Posts: 94 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Sep 2013 Posts: 94 | That sounds like a great menu! And you have an awesome dance partner.
You are right, there is lots to be happy about, especially the no pain part. it is no fun once that hits.
Take care.
36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound
| | | | | Joined: Oct 2013 Posts: 69 Likes: 1 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 69 Likes: 1 | I've been thinking about this a lot lately. A few weeks into treatment I noticed I had gained a little belly even though my weight was the same as when I started. My arms and legs most notably have lost muscle.
Last week when I went for a very short run my legs were completely worn out. After less than two miles. Before starting treatment I had run a 10k. So in a span of 6 weeks I've gotten completely out of shape.
I'm no expert on diet/metabolism, but I have lost muscle and added fat. Kind of an anti fitness program. Maybe the reduced activity and greater calorie demand from cancer treatment drives this. Or maybe a side effect of the treatment itself.
Oropharyngeal Cancer, SCC, HPV 16+, stage IV T1N2b age 45
Started in my tonsils and spread to my lymph nodes
Cisplatin x3 with concurrent daily radiation treatments started 10/22/13 finished 12/6/2013
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Gulfcoast, I'm seeing the same thing. Belly has stopped getting smaller after losing about half of it over first 3 weeks of treatment. A bridge partner touched my shoulder the other day and said, you are getting downright boney. So, I guess the muscle mass is decreasing as everyone says.
Now as for being completely out of shape and only able to run two miles. It will come back, you know it will.
Getting through this, one bottle of Ensure at a time. I'm so tired of the taste of cardboard.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | You are doing great, hang in there.
[quote]I'm so tired of the taste of cardboard. [/quote]Be thankful for the cardboard taste. It means you got NO peg.!!!!!!!!!!!!!!!!!!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Oct 2013 Posts: 69 Likes: 1 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2013 Posts: 69 Likes: 1 | Tony, you're getting there. I'm with you on the distorted taste. It's almost an adventure to know how something should taste and experience what it tastes like now.
Best of luck to you. Onward and upward.
Oropharyngeal Cancer, SCC, HPV 16+, stage IV T1N2b age 45
Started in my tonsils and spread to my lymph nodes
Cisplatin x3 with concurrent daily radiation treatments started 10/22/13 finished 12/6/2013
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