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#173812 11-11-2013 07:29 PM
Joined: Nov 2013
Posts: 1
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Joined: Nov 2013
Posts: 1
I had tongue cancer. treatment was 33 radio sessions + 3 chemo sessions with ciplastin.

I was wondering if anyone on the forums have had any experience with "mucositis'. I developed a bad case of it after the last radiation treatment to the neck/mouth area.

It's been almost 6 weeks since last treatment and I am in such a pain in the mouth that I cannot eat any solids and can hardly speak.

Please respond with your experiences and if you have any idea on what this "torture" can last?

JUANR #173814 11-11-2013 10:10 PM
Joined: Jul 2012
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Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Welcome JuanR, radiation keeps on working for just as long as radiation treatment lasted, 6 werks, so it is still working, and you need to keep doing all he preventive measures done during treatment. There can be other co-conditions too, which may be difficult to differentiate like bacterial, fungal and viral infections, and even those are difficult to tell apart. and each need to be treated with different meds. Even after all that, the rope mucus, and dry mouth follows. It takes time for most to resolve, sometimes from a few weeks, to months to years, but does get better. 6 weeks out is still early.



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JUANR #173824 11-12-2013 06:07 AM
Joined: Sep 2006
Posts: 8,311
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Patient Advocate (old timer, 2000 posts)
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Joined: Sep 2006
Posts: 8,311
Just about everyone getting radiation to the oral cavity suffers from mucositis but everyone can "suffer" differently. IMO 6 weeks is really pushing the upper limit so as Paul suggested do get your cancer docs to take a look at this ASAP.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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