| | Joined: Nov 2013 Posts: 5 Member | OP  Member
Joined: Nov 2013 Posts: 5 | I see a lot of people say they discovered a lump on their neck. How big of a lump did you experience? I know everyone different. Just wondered if it's like a golf ball or if it's ever smaller. Just curious.
Thanks
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Mine got to about the size of a thumb in my neck
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Nov 2013 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2013 Posts: 34 | Hi wildcat, on St paddy's day 2010, I discovered a lump pretty close to a golf ball under my left ear. It was just there, never remember it being small and growing. just bam! there it was. I went to my PCP about a week late, Got a Ct scan that called for a biopsy of my left tonsil. SCC with mets to one node.
discovered a golf ball in my neck St.Paddy's day 2010.
Dx stage 4a left tonsil ca may 2010 at 50
non smoker, moderate beer drinker
HPV-16 pos.
tosillectomy
9 weeks Cisplatin
35 rads
nov.2010 PET NED
2011 2x PET NED
2012 2x PET Ned
3/13 Pet NED
SEptember 2013 Pet uh-OH.questionable and anxious
follow up pet, yup, its back.
mets to sub clavivular and mediasteinum nodes
biopsy positive scc.
trying to figure out next step
my imaginary friends think I am crazy.
| | | | | Joined: Jan 2013 Posts: 57 "OCF Canuck" Supporting Member (50+ posts) | | "OCF Canuck" Supporting Member (50+ posts)
Joined: Jan 2013 Posts: 57 | Hi wildcat mine went up and down in size ranging from barely feelable to thumb size never got as big as a golf ball, they did a fine needle biopsy on it which came back negative, this happens quite often and caused a delay in my treatment as they thought it was a branchial cyst. I go in for my regular checkup today,finished treatment mid march and feel great. Good luck on your treatment plan...ken
46 yr old non smoker moderate drinker
Lump on neck
Dx branchial cyst by fna mar 2012
Op to remove dec2012 biopsy back hpv 16 scc
Starting rads jan 31 no chemo docs say?
Finished mar13
Pet scan june 30 NED :)))
Back to work and enjoying life
Checkup aug 12 all good
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I would get another opinion from a Comprehensive Cancer Center. I would not lean towards the surgery biopsy but would agree to a FNA but it may be best just to wait and see what develops, if anything.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there... yes a lot of them do discover a lump in their neck. It's usually painless - Mine grew after I was diagnosed with a tongue tumor (non HPV) Often HPV related tumors spread more rapidly to the nodes and are found there first as Base of tongue cancer (essentially found in the throat - not the oral tongue) or tonsil cancer, is generally painless and asymptomatic - except for swallowing issues when it becomes a larger tumor. This is why a lot of BOT cancers are often found at an advanced stage. Anyway - my tumor was about the size of a small birds egg. 1.4 cm by the time it was removed. Often if they are small and as you noted to not light up, drs don't get excited. I had two oncologists say this to me as I had a small 3mm node light up on my opposite side prior to starting treatment. I was crazy concerned about it so the Rads guy included that side in his radiation plan and charred it nicely. ;o) Chances are if they are non reactive and small, then it's normal or responding to something else. However, I would keep an eye on all of them. Good luck with your tonsillectomy.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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