| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Never heard anyone recommend keeping the fluoride trays in while sleeping. I'm not a fluoride scientist but I do know that I only kept them in for 30 mins before I went to sleep and I have had zero teeth issues 7 years post Tx so only 30 mins worked for me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Good morning all. Sometimes it's worthwhile to go back and re-read the whole thread start to finish. I did that this morning; and was stricken with how things change over time. Who would have known any of this would go the direction it did, who could have ever predicted this particular set of twists and turns traveling down Cancer Boulevard.
Re-reading did remind me of questions I need to ask the RO tomorrow when I get my first rads. Questions about why has he chosen rads only and not rads with chemo; why has he adopted a wait and see attitude about this enlarged lymph node as opposed to a biopsy right now. And since his staff did another neck CT as part of simulation process has he looked at that lymph node in comparison to original CT done roughly 6 weeks ago.
I have to thank you guys for giving me the needed push to get these answers. It's very easy to just sit back and let the doctors do their thing and in the process never get your questions answered. Or you can listen to the patient advocate training that this group does so well and not let those opportunities to ask questions pass.
But I suppose mostly what I want to share is appreciation and thanks for getting to meet such an outstanding group of people, from the technical knowledge of the Christine's, Cheryl's and David's to the how to prepare your mind to handle this battle from Bart and the just plain friendship and warmth of people like Ambra. It has made this journey into the unknown way more comfortable than it would've been otherwise. I don't ever fear what is around the next turn as I know one of you will be standing waiting for me to arrive and pointing out the right direction.
Thank you all dearly. I just hope I can help others as you have helped me.
Tony
Last edited by n74tg; 11-03-2013 06:33 AM.
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Good luck with rads I'm sure you'll do fine through it. As for the non biopsied node he's probably thinking I'm throwing it in the cooker anyway so it will be nice and toasty regardless, assuming he has included it in the radiated area I would leave it as rads will likely take care of it... ZZZZZzzzzap! The chemo I am curious about as well. It softens any lurking cancer so it's worthwhile. Hugs
Last edited by Cheryld; 11-03-2013 03:18 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tony,
I can understand why you feel Christine and Cheryld are cold hearted but me????? lol
Good luck with the treatment and rest assured we will be here 24/7 to help any way we can.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hello All:
Since I had first radiation treatment today:
I am beginning a new thread in Currently in Treatment.
Same title, but add a "2" ie Old B-52 Bombardier #2.
Please follow me over there, at least that's how I think this forum is supposed to work.
I won't generally be posting to this thread anymore.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
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