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Joined: Dec 2010
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
Hi there - I brush twice a day with a high flouride toothpaste, and or sensodine. Usually brush after breakfast and before bed, that way there's only lunch, that doesn't get cleaned off right away. But I do rinse frequently to get rid of any starts gunk and minimize my processed foods (as in I rarely eat store made foods - I make it fresh) and sugar. And use my flouride trays right after I brush either in the morning or at night - usually at night though. I also use a water pick to clean the gum line and between my teeth. smile seems to be working - my dental oncologist is happy - so far.

Last edited by Cheryld; 10-26-2013 08:55 AM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Sep 2013
Posts: 94
Ambra Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Sep 2013
Posts: 94
Thanks Cheryl! That helps a lot, glad to hear someone else uses high fluoride (prescription strength?) paste in addition to the trays. I was worried about toxicity of too much fluoride.


36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



Joined: Jul 2009
Posts: 1,409
Likes: 1
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,409
Likes: 1
I got the same advice as my fellow David, and I use the Prevident only at night in the trays. The rest of the time I HAVE BEEN using Biotene (R.I.P.) and will now looking for alternatives while watching my dwindling supply run out.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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