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Joined: Aug 2011
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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Aug 2011
Posts: 596
Hi, Maris.

I'm sorry about your daughter's cancer and the strain that you are feeling in your relationship. You are right in your instincts not to take it personally, as hard as that may be.

I can remember sitting in my recliner as I recovered after my first surgery. I'm not sure how far out I was, but I was in a deep depression. Even though I got good news in that I had clear margins and clear nodes from my neck dissection, I sank into a deep depression.

My Mom took a FMLA to come up and take care of me so my husband could return to work and so she could help take care of my 2-year-old dtr. I was at least 30 weeks pregnant with my second child, my son. I was just staring at the TV and I could feel her watching me. She finally said, "You seem very depressed.". I just flatly replied, "I *am* very depressed." as tears rolled down my cheeks. You must try to keep in mind that her life as she once knew it has been turned upside down by this disease. She was probably healthy one day and told she could die the next. That can lead to some serious emotional problems. I was diagnosed with PTSD, which only worsened after my second diagnosis, which was much more serious in that I would have to undergo more surgery and chemoradiation and now had 2 children.

She is fortunate to have you there to take care of her. She may need some time to come around. She may need to seek help for treatment for possible depression/anxiety. It affects all of us...caregivers just as much, I think. Please remember to take care of yourself, too. Since she is a little further out from her surgery, you may not need to be there as much and you can take a probably much-needed reprieve.

I am confident that things will "normalize" in time. Things have changed for all of you and time, and perhaps with some specialist help, it may make all the difference in getting you back on the road to having your "old" relationship back.

Best wishes,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Joined: Oct 2013
Posts: 6
maris40 Offline OP
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Joined: Oct 2013
Posts: 6
Thanks,Karen,its been 4 months out for us and some days I notice a change in her mood,as she is more receptive in talking and other days not so much,I believed she would feel a relief that surgery went well,never thinking depression. As for feeling smothered,I am going to visit my sister up north and let her and her husband be alone,maybe with not so many people around,she might actually have a chance to think.

Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
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Could be pain too. When I have it, I don't want to be bothered, and don't talk much.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Oct 2013
Posts: 6
maris40 Offline OP
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Joined: Oct 2013
Posts: 6
I want to thank everyone for all the helpful insight into being a caregiver of a cancer patient and after 4 months of very little communication we are beginning to talk and joke like we used to. It doesn't happen everyday,some days are good and some aren't so good,but at least I understand why and when to back off.


I am a caregiver and parent whose adult daughter was diagnosed with stage 3,scc and who has gone through surgery,it has been 4 months since surgery and our relationship is quite strained as to where we don't talk anymore except about superficial things.Anything I say is wrong,so I don't know what to say anymore. I'm really at my wits end,trying not to take it personally.
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
That's progress. Glad to hear it.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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