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Nikgogol #172341 10-10-2013 06:45 AM
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
Ditto what David said... and welcome. You are very lucky that you didn't have to have rads and chemo, hopefully you never have to. Hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Nikgogol #172342 10-10-2013 06:52 AM
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Welcome Nikgogal,

Thanks for the thorough story. One thing that stands out, is it's HPV positive, and cancer was on the lateral tongue, which lesion was removed, but 90-95% of HPV is from the base of tongue, palatine or lingual tonsils, and HPV is not common on the oral tongue, but can happen. In a report I've read, investigators looked at samples, scans of patients over a number of years, I believe HPV, and found many were misdiagnosed with oral cancer originally, when the primary was in the oropharynx all along, and was either missed, too small to see on scans, and can be difficult to find with all the crevices. BOT can metastasize to the oral or anterior tongue, but usuall not the other way around. anterior tongue going to the posterior BOT. I noticed a few here, from their signature line, who had tongue cancer originally, later on had a recurrence in the BOT makes you wonder. I assume they did biopsies during surgery, but BOT has deep musculature, and HPV is usually not surface level like tobacco related cancer is. Not to put a damper on your goods news, but figured I'll mention this, and your doctors know better than I do.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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