So, had my biopsy appointment today, and they decided after looking more closely not to do one. They are concerned it might be in the bone, and apparently a biopsy is not the way to go, so went for x-rays, and waiting on what other tests, but thinking PET/CT.

Pretty discouraged right now.

fingers crossed its not bone or anything

Tina, I know this waiting for anything definitive is just awful. At this stage though you are borrowing sorrow from tomorrow. This could well be nothing serious. I am praying that is so. You know all the helpful advice to keep busy and try to think of other things. When I was in this position I also found a blue sleeping pill a must to get a good nights sleep to avoid over thinking everything.
Know that we are thinking of you and keeping our thoughts positive.
Tammy

Yes, I know. The pity party has passed, and I'm now just irritated that I waited for this appointment, only to now have to wait yet again for other appointments.

I'll be honest in that it took me a while to let go of the anger of misdiagnosis for several months (my GP, twice told me it was nothing, then the 3rd time that it was a canker sore and tried to burn the tumour off), which allowed this to grow substantially. This has brought up those feelings again.

I have again shoved them aside, and am being proactive on everything, pushing for early tests, but geez, it's tiring to always have to push.

Either way, it is what it is, and I'll deal with it.

The waiting is the worst! I have no patience for it either, but I was always like that. When I want something, I want it now, not tomorrow, but yesterday. I guess when you're like that you expect that from everyone else, but found in the medical field, it's not like that. Good luck with further testing.

So, still no news on my weird alien growth. The x-ray came back normal so they have ruled out a sarcoma. That's good news. Now going for a CT to try and figure it out.

Also had my 1 year - chest xray good, blood good, but they found an anomaly on the flap on the CT. Surgeon is pretty sure it is the artery, but is following up in month to make sure.

When is the ct...?

Turns out he wants an MRI - Wednesday morning. Which may be the fastest MRI ever.

I love my surgeon - he gets me, and knows I'm stressed about this, so he made sure it was expedited. He also said if we need a biopsy done, he'll do it himself.

Great... though now would be better!!! ;o) some hospitals hold spaces and then are able to give them away the day before, maybe call and see if they have any cancellations? This has been several weeks now as far as I recall and next week it sounds like a month that's too long to sort this out. Hoping it's nothing, but the waiting not only sucks but can be deadly if it goes on too long.

hugs

Unfortunately there are only so many court appearances that can be moved around (still got bills to pay and all). Since it's the weekend, the difference between Monday and Wednesday will just have to be what it is.