Welcome to the club nobody wants to join Morris!!! You have found the best source of information and support on oral cancer on the web. As you travel this rocky road keep us posted on your treatment and concerns. Someone seems to always have similer experiences to share. I wish you good luck on your treatment with few side effects.

Best Wishes, Danny Boy

I want to thank everyone for their concern and support. It's devastating to find out you have cancer, but I'm glad I can share with others who have already dealt with this disease.

Thanks again and God bless, I will keep everyone updated.

Morris

hi. i am new to this site . i hope i am doing this right . i have nasal pharynx carcinoma . i am 36 .

Hey modappu,
Glad you found this site...you will get really good ideas and feel so much support and answers to what you might expect to go thru. Do you have squamous cell carcinoma of the nasal plarynx? You will need to make sure you are at a comprehensive cancer center where teams make up the diagnosis and treatment plan. Tell us more...what stage you are, what size tumor...lymph node envolvement...surgeries? From your post it sounds like you might have scc in the nasal area? What were your symptoms and has anything been done yet? What are the recommendations for you based on your stage and node involvement?

Welcome here and there is so much information on this board for new members. May God be with you and give you strength to handle all treatments that will be done to whip that cancer out of there. Be strong/God bless you!
Debbie

im 36 . i was told in march 2003 i had npc . had all my teeth pulled . had extensive chemo and rad . had a feeding tube put in . had a modified neck dissection . im in remission now . they say everything looks good . i went to unc chapel hill . they were wonderful . i was even treated by a doctor who studied this type of cancer which was very helpful to me . im still trying to gain weight . i went from 140 to 88 . it was so hard . i had to quit my job , because i was working 40 plus a week and not gaining weight . i woke up one morning and said my life and health is way more important than my job . im doing good but i still have alot to do . i have a hrd time swallowing alot of things but they say that will get better . this is some of my story . short version . i hope i answered some of your questions . thanks for talking with me . hope to hear from u soon .

I was referred to this site by a nurse (Oral Cancer Survivor) from my Head & Neck support Group. I hope I meet the requirements to participate so here goes..

My name is Blayne, 45 yrs. Male non-smoker, was in excellent health until I was diagnosed with SCC of the Nasal Septum May 28, 2004. Stage Three. Rare diagnosis so I have found out. My symptoms were nose bleeds for about two years and I went to the ENT doc fairly regularly.Had CT Scans and was told I just had a "Deviated Septum" Not until I started yelling at the ENT doctor to "DO SOMETHING" was a biopsy performed.

The tumor had spread to my hard palate so I had pretty radical surgery to save my life.
Total Rhinectomy (Nose removal)and Palectomy (Hard Palate removal)was performed last July. The surgeon did an excellent job, however he did not tell me I would be "Mute" without a device called an "Obturator" (mouthpiece-retainer) he also went very close to the roots of my teeth as that was where the tumor was headed next.

I am now eight months cancer free! And so far no radiation or chemo!

I have to speak with an Obturator (Mouthpiece-Retainer) and I am going thru some painful procedures at UCLA Maxillofacial Dental Division.
I have adapted well but I am dealing with some anger issues. I have found that doing some inter-action on some cancer sites have helped out. But I tend to act out my anger at the wrong times within my family, so it causes some family issues that are difficult for a man to express.

I go out in public with a huge bandage over my former nasal area, and have a daily struggle with
pain in my teeth and speaking clearly.

I am still off work as I was an outside sales person and work in the advertising field, filled with people who are big on appearance! I suppose I fit the "In-between" cancer survivor" for this site. But I can sympathisize with people who are dealing with the Oral Pain and the anxiety of reoccurrence. However SO FAR SO GOOD!

hi blane , welcome ,although its not the place u would choose to be however u have found the ideal place ,the support from the people on this site is magnifecant]sp to me it is a sanctury somewhere were everyone understands and supports u may ur god go with u .

my best regards maz

Hello Blyne,

Is there any plastic surgery they can do for you?
Haven't heard anything about the type and location of your cancer. It sounds like you came through the surgery pretty well. I hope you continue to progress to a complete and full recovery!!

The family issues are fairly typical. We tend to vent on those close to us. We don't mean it but thats usually the way it goes. Caregivers deserve a special place in heaven. It puts alot of stress on the family. You can ask for some anti-depressant drugs to help you through the healing phase. Most of us are on them.

Best Wishes, Danny Boy

HI BLAYNE , GLAD TO HEAR U R DOING WELL . YOUR FAMILY CATCHES THE BLUNT OF YOUR ANGER BECAUSE THEY R CLOSER TO U . IT WILL GET BETTER , I HAVE DONE THE SAME THING . MY ANGER WAS EVEN DIRECTED OUTSIDE OF MY HOME . PEOPLE IN PUBLIC . I THOUGHT I WOULD HURT SOMEONE . NOT ON PURPOSE BUT BECAUSE I WAS SO FULL OF ANGER . IT WILL GET BETTER I PROMISE . U CAN GET SOME ANTI-DEPPRESSANTS . I DID . IT REALLY DOES SEEM TO HELP . ANTTIME U NEED TO TALK U CAN EMAIL ME @ [email protected]. HOPE U HAVE A GOOD DAY .

HI MAZ334 . HOW R U ? FINE I HOPE . I C U RESPONDED TO MY TOPIC , BUT I CAN'T C YOUR REPLY . SORRY . IM NOT GOOD AT THESE FORUMS OR MESSAGE BOARDS . I ASK PEOPLE TO EMAIL ME . MY EMAIL ADDRESS IS [email protected] . IF U EMAIL ME I WILL RESPOND BACK . THANK U TONYA