| |         |   |   |  |   |  Joined:  May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) |   |   Senior Member (100+ posts) 
 Joined:  May 2013 Posts: 188 Likes: 4 |  It is Jevity and manufactured by Abbott Labs. I have been on Jevity as a supplement through my tube from week 2 of treatment. My tube should be out in early October so I congratulate you on losing yours. That has to offer a sense of freedom. Eating is a challenge but as you can understand from all of the postings many options exist.   Age 55 HPV 16+ SCC, BOT 050613 Stage IV
 great team at OSU
 Tx 6 weeks of rad started June 3
 8 weeks of chemo started May 28
 RTOG Phase III trial Cetuximab group.
 Treatment completed 7/16/2013
 PET Scan completed 10/08/13
 Results discussed 10/11/13
 NED - Free but am I
 Next part of the journey?
 1year PET 10/24/14 NED
 Good reports now 10 years out.
 
 |  |  |   |   |   |  |   |  Joined:  Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |   |   "OCF Canuck" Patient Advocate (old timer, 2000 posts) 
 Joined:  Dec 2010 Posts: 5,264 Likes: 5 |  Yah tubeless!     Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
 |  |  |   |   |   |  |   |  Joined:  Jul 2013 Posts: 24 Member |   | OP   Member 
 Joined:  Jul 2013 Posts: 24 |  Thanks everyone! Now I have a new problem. I've been crushing my meds and taking them through the tube. Now, I'm having to try swallowing all these pills. I have a tendency to get choked on them. Some because of the size and some because they are not coated. I decided to try crushing them and adding a little water to swallow that way. Something in the meds burned my throat really badly, also very bitter. Guess I'll go back to trying to swallow them whole. Does anyone have any suggestions about this? So proud to be rid of the tube and I want to get this part of the situation easier to manage. Thanks in advance for your help and encouragement!!   Sandra
 5/15/12 Diagnosed with SSC
 6/20/12 Surgery-Hard/soft palate with RND, trach and PEG, teeth taken,  Age 51
 8/20/12 PET scan showed cancer had reoccurred
 9/4/12 Began Chemo and Radiation
 1X cisplatin  2X carboplatin  35 radiation
 5/28/13 Latest scans---Cancer free
 12/2013 Still Cancer Free MO wants no more CT scans
 (not sure how I feel about that)
 
 Blessed and Very Much So
 |  |  |   |   |   |  |   |  Joined:  Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) |   |   Patient Advocate (old timer, 2000 posts) 
 Joined:  Nov 2006 Posts: 2,671 |  Sandra - Don't know if this could help, but I've seen others here mention trying to get the meds in liquid form to make them easier to get down. Maybe ask your doctor about this?   Anne-Marie
 CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
 
 
 
 
 |  |  |   |   |   |  |   |  Joined:  Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |   |   Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) 
 Joined:  Jun 2007 Posts: 10,507 Likes: 8 |  I agree, liquid meds would do the trick.  Another suggestion is to crush ed and add them into a spoon of yogurt or applesauce.  That should mask the taste and burning.  Christine
 SCC 6/15/07 L chk & by L molar both Stag I, age44  2x cispltn-35 IMRT end 9/27/07  -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma  2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years  very happy to be alive    |  |  |   |   |   |  |   |  Joined:  Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) |   |   "OCF Canuck" Platinum Member (300+ posts) 
 Joined:  Sep 2012 Posts: 381 |  The trick I used was to coat the pills in something slippery - a little bit of butter or some olive oil works - it avoids them starting to dissolve and stick. Coat it and stick the pill back as far as you can, then take a sip of water. It sounds gross but you can't taste it anyway and it slips right down.    Tina
 Diag: Aug. 13/12
 T3N0M0
 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
 Surgery October 11/12
 Chemo/rad on hold due to clear margins and nodes
 Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
 Dec 16/13 - anomaly confirmed artery, all clear
 nickname: "get 'r done"
 Plans: kick cancer's butt
 |  |  |   |   |   |  |   |  Joined:  Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |   |   "OCF Canuck" Patient Advocate (old timer, 2000 posts) 
 Joined:  Dec 2010 Posts: 5,264 Likes: 5 |  Yup even a gulp of a thicker liquid, I take my pills (vitamins) with a smoothie or almond milk. I have no problems.     Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
 |  |  |   |   |   |  |   |  Joined:  Jul 2013 Posts: 24 Member |   | OP   Member 
 Joined:  Jul 2013 Posts: 24 |  Thanks! Good things to try!
   Sandra
 5/15/12 Diagnosed with SSC
 6/20/12 Surgery-Hard/soft palate with RND, trach and PEG, teeth taken,  Age 51
 8/20/12 PET scan showed cancer had reoccurred
 9/4/12 Began Chemo and Radiation
 1X cisplatin  2X carboplatin  35 radiation
 5/28/13 Latest scans---Cancer free
 12/2013 Still Cancer Free MO wants no more CT scans
 (not sure how I feel about that)
 
 Blessed and Very Much So
 |  |  |   |   |   |  |   |  Joined:  Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) |   |   "Above & Beyond" Member (500+ posts) 
 Joined:  Jul 2011 Posts: 945 |  Hi, Sandrasome pills are not supposed to be crushed or even split due to an enteric coating - some NSAIDs (like my RA med, Lodine) is like this. Check the label or ask the pharmacist.  These would be a good candidate for the slippery coating trick.
 
 For the pills that can be crushed, you can get an actual pill crusher to make it easier.
 
 Best of luck and congrat's on going tubeless!
 
 Maria
 
Last edited by Maria; 09-26-2013 10:23 AM. Reason: spelling
   CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
 First symptoms 7/2010, DX 12/2010
 TX 40 IRMT (1.8 gy) + 10 Cetuximab
 PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
 |  |  |   |   |   |  |   |  Joined:  Aug 2013 Posts: 144 Senior Member (100+ posts) |   |   Senior Member (100+ posts) 
 Joined:  Aug 2013 Posts: 144 |   What I am doing as far as getting my pills down is 1. Take the smaller pills first.(this in my mind kind of primes my throat for the larger ones)2. Don't over think it.(don't just do it but don't dwell on them getting stuck). 3. Don't panic if a pill doesn't get all the way down.( In the case of a stuck pill try more water first, if still in there have a small bite of food. I know that it can sound scary to put more on top of a pill that is stuck. but take the bite of food and follow with some more water.(or ensure for thickness). This has always worked for me and some of my HIV pills are huge. The worst you can do is panic, or try to get the pill back into your mouth from your throat. The food part is directly from my MD. Happy swallowing. And congratulations on getting the tube out! Shawn.   . Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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