I check my BP quite often, especially when I have these "spells". I've never checked it in my ankles though. I will definitely try that next time. The doctors say that they had to take part of the jugular vein in the left side of my neck when they did surgery, clipped several nerves because the tumors had wrapped themselves around them all. They thought the use of my tongue would be effected but it wasn't. My primary doctor told us that there are many receptors in that area and could be a major factor in my dizzy spells. I had high blood pressure, diabetes and cholesterol issues prior to the surgery but since loosing so much weight I have been able to stop taking meds for all of those issues. I drink water constantly so I don't think it is a dehydration issue. Go with a water bottle 24/7. Have it by my bedside at night and always take a drink if I wake up during the night.

Thanks all for the very helpful information and some I will be asking my doctor about when I go next. I feel my frustration level increasing each time I have one of the bad spells, just want to sit down and cry but know it won't help. Guess I will just have to get use to it?? What do you all think?

I had a few problems during the first year but nothing until year 8. It happens often but only in the summer. Last week was the first time in 2 years.

I also have the same problem. They even sent me next to a faint and fall clinic at the Unversity of Utah hospital. They did the blood persure check from seating to standing. It would fall after standing for a min. I usually can make it about 12 to 20 steps and it hit. Sometime I have to seat down at once or if a bad one I have to lay right down on the floor. Then I can get up and start moving. I hate when it hit when I get out of the car. A few times I have to lay my upper body on the trunk of the car bad hope the legs will not give out.
In six and half years I have 3 rounds of cancer and each time it's a different cancer. Round one was chemo and radiation, round two was 2 inched of the right back jaw removed and rebuilt anf the last round was the front part of my tongue removed and a skin flap done. Plus now all limp nodes have been removed from my neck.