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| | Joined: Aug 2013 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2013 Posts: 33 | Hello everyone,
I had a partial glossectomy of my tongue on Tues 8/12. and I was just wondering how long it will take to recover. I also had a neck dissection. I am having problems talking and swallowing still. I am worried that my talking will NEVER come back. My speech gets worse as I stand and I seem to have an excess of saliva as well. I am the mom of 4 kids and a nervous wreck. I am probably freaking out too early. My family says that my speech has gotten better but I of course think its worse. Please give me some incite on if it gets better and how long it takes. I just want to eat food and be more "normal" again. Plus my tongue feels like it would if you burned it on something hot. There is sensation, but not a whole lot of taste going on. Thank you so much and many blessings to you all!
~Thersa
Age 36 Mommy of 4  Diagnosed 8/5-tongue cancer T2 tumor with partial-glossectomy 8/13/13 along with neck dissection HPV positive Path report all clear margins! 11/5/13- enlarged taste bud and mild Dysplasia Surgery planned for 11/12 11/12 cancer cells removed Staged increased to stage 3. T3N1 Chemo and rads started 3/4/14 33 rads and 6 chemo Peg tube 3/7/14 37 radiation and 8 chemo treatments Completed treatment 4/25/14 recurrence 12/1/15 surgery for Hemiglossectomy 12/11/15
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It will take a few weeks to heal - i was pretty good at week 3 - did they give a flap as well? I know it hurts - the tongue is full of nerves feel better soon and good luck with the biopsy results.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2013 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2013 Posts: 33 | No flap. I just had the top right side removed..so it still looks like my tongue..just with one side being lower than the other. I guess I am rushing things a bit. I just want to talk more normal and not drool everywhere when I am standing upright. I know its not anything to freak out over...but its frustrating and scary to think about. I also think it has to do with the stitches still being in there and one part seems to be sown weird..but I will ask my dr about that on Friday when I get my staples taken out from my neck dissection. Thank you so much for your response. It helps me out more than you know!
Age 36 Mommy of 4 Diagnosed 8/5-tongue cancer T2 tumor with partial-glossectomy 8/13/13 along with neck dissection HPV positive Path report all clear margins! 11/5/13- enlarged taste bud and mild Dysplasia Surgery planned for 11/12 11/12 cancer cells removed Staged increased to stage 3. T3N1 Chemo and rads started 3/4/14 33 rads and 6 chemo Peg tube 3/7/14 37 radiation and 8 chemo treatments Completed treatment 4/25/14 recurrence 12/1/15 surgery for Hemiglossectomy 12/11/15
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I looked scary as hell for about 5 weeks. They did a flap on me so it wasn't open and as sensitive but I had a crapload of stitches lucky me... patience...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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