| | Joined: Jul 2013 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2013 Posts: 26 | I was reading through your posts and was curious how you were originally diagnosed. You said it was originally a swollen lymph node but I was curious what was found and how. I feel like I have a similar situation and I was recently scoped but I'm just paranoid that someone could have been missed. I'm new to is forum so I'm not sure this is the right place to ask, but I am also younger, 28, so I feel like they aren't as thorough since I am young. Any advice?
Jon, 28
Undiagnosed
Scoped - Clean, 7/13
Scoped - Clean, 8/13
CT - "acceptable" enlarged lymph node 9/4/13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jon, Many of us HPV'ers had their cancer discovered solely by a painless swollen node(s) and many of us were given antibiotics first thinking it was infected. When that didn't work usually a FNA was our next step. Once confirmed as cancer then it's on to find the Primary or where our cancer began before it broke off and found the node.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2013 Posts: 134 | Thanks a lot davidcpa... Reduce several pages of blogging to 3 concise sentences.  What he said.
Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | [quote]Reduce several pages of blogging to 3 concise sentences[/quote]Ditto! Three sentences to one word! lol
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Jul 2013 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2013 Posts: 26 | I just read the posting etiquette section. Sorry for the previous post!
Jon, 28
Undiagnosed
Scoped - Clean, 7/13
Scoped - Clean, 8/13
CT - "acceptable" enlarged lymph node 9/4/13
| | |
| Forums23 Topics18,286 Posts197,238 Members13,433 | | Most Online2,386
Nov 19th, 2025 | | |
This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
| | |
|
