| Joined: Jun 2013 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2013 Posts: 49 | We are down to the home stretch, 2 more chemo/13 more radiation visits. And now, we are setting our sights on Richard doing what he loves doing.
Richard's 2 passions are landscaping/surfing. He has the PEG tube inserted, the opening has pretty well healed around the tube. We have been told that the PEG may be something he lives with for the next couple of months, for nutrition's sake. He is still working, but has not surfed/swam since the beginning of treatment.
Question: has anyone swam with the PEG tube still installed? Any tips? It would be great even if he could just go swimming in the ocean.
Barbara (CG) of Richard, whose passions are on holding pattern
65 yr old male in great health other than C. 5/1/13 lump discovered, 5/15 Biopsy, 5/29 PET/CAT, Diag: SCC HPV+ rt tonsil, 1 node, Stage III T1-2 N1, 6/10 PEG, 06/17 Chemo, 6/24 Radiation, 7/6 100% PEG, 8/14 Done with treatment, 11/6 follow-up PET, 11/8 NED, 11/13 PEG removed!
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Congrats on being in the home stretch!
He's probably not going to be in any shape to surf or work in the garden for a few weeks post treatment but when he's feeling up to it the garden may be a better choice.
I was told no swimming. Showering is Ok but no baths. I've heard some say the ocean is Ok but not lakes, however, I would check with your docs.
"T"
Last edited by fishmanpa; 07-28-2013 07:01 PM. Reason: added content
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jun 2013 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2013 Posts: 49 | Thank you, fishmanpa, for your response.
Richard is a landscaper, and continues to work, as it is his business and livelihood. I notice that when he does work (usually in the morning), his mind is not on his pain, maybe those productive endorphins are kicking in. By the afternoon, he is pretty wiped and rests. Hopefully this will continue, post-treatment.
His oncologist is also a surfer on the side, and said that post-treatment, he could wrap himself with velcro waist belt to hold the tube close to his body, in order to swim and possibly surf. We shall see, where Richard is in a couple weeks.
Barbara cg of Richard
65 yr old male in great health other than C. 5/1/13 lump discovered, 5/15 Biopsy, 5/29 PET/CAT, Diag: SCC HPV+ rt tonsil, 1 node, Stage III T1-2 N1, 6/10 PEG, 06/17 Chemo, 6/24 Radiation, 7/6 100% PEG, 8/14 Done with treatment, 11/6 follow-up PET, 11/8 NED, 11/13 PEG removed!
| | | | Joined: Jun 2013 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2013 Posts: 49 | Aha, found something posted by ChristineB in 2010 on OCF via google! Press & Seal Glad Wrap possibilities in Richard future??? http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=118241
65 yr old male in great health other than C. 5/1/13 lump discovered, 5/15 Biopsy, 5/29 PET/CAT, Diag: SCC HPV+ rt tonsil, 1 node, Stage III T1-2 N1, 6/10 PEG, 06/17 Chemo, 6/24 Radiation, 7/6 100% PEG, 8/14 Done with treatment, 11/6 follow-up PET, 11/8 NED, 11/13 PEG removed!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | We made a post about swimming, with some links, several months ago. The main issue is risk of exposing yourself to the pollution, micro organisms, and further risk may be based on how your immune system is. The safest seemed to be a pool, but others were more risky. The link has several coverings for pegs, Tracts, ports. I used Saran Wrap the first week the peg was placed, and was thinking about going to an indoor pool, and using it, idk yet. Activity wise, you have be careful of the type, level, not to pull the peg out, which surfing seems it could, and would need some type of protective measures as some mentioned.
As far as landscaping, the issue is exposing yourself to bacteria in the soil with a compromised immune system. A person should wear gloves, mask, and other protective equipment, and is best checking with the doctor.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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