Anyone who has been keeping tabs on my other post re: Jen and her road to recovery would be surprised to see a post here in the recurrence section.

Unfortunately, the results of the biopsy obtained from the bronchoscopy surprised everyone with the isolated nodule (2cm wide) in her right lung coming up as positive for SCC.

We are now preparing for our next round of treatments with a PET scan scheduled in for Wednesday followed by the multidisciplinary cancer team on Friday.

Their initial thoughts is that it is operable via keyhole surgery and they will assess the PET scan results to see if further treatment (chemo / radiotherapy) will be necessary afterwards.

I don't think reality has quite sunk in for either of us and we are a bit in shock and would appreciate any feedback, comments and/or advice anyone who has been a similar situation with their road to recovery..

thanks.

Jay, I am so sorry to hear this. I know too well how absolutely devastating a recurrence is. I, personally, was stunned when Kris had his. I felt quite helpless initially. Only once we had seen the tumour board with a treatment plan laid out did I feel that I could really cope.
The good thing is that you do have options. The team are coming up with a treatment plan. Just like the first time, you will get through this.
You know all this already about taking each day at a time, but it really is true.
I'm sure someone with a similar scenario with a lung nodule will post shortly.
Thinking of you, Jen and Hunter,
Tammy

Jay, Im very sorry to read about Jen's recurrence. Im sure your family is in shock. It will take a while for the reality of the situation to sink in.

On the good side, this sounds like it was caught very early. A 2cm nodule is very tiny. Hopefully this will be easily cured.

Best wishes!!!

Jay-I am so sorry to hear of this development. It is similar to news my husband and I received at end of April, following 3 month followup PET scan and a biopsy. He has focused on putting one foot in front of the other, work-wise and children-wise, while I have done much research and become more active on this site seeking information--and finding not only info, but great compassion.
He has a very small malignancy in the hilar lymph node of lung. We are still evaluating treatment options, but 3 opinions thus far indicate that surgery is likely not an option for us, I believe because it is in the lymph node. The likely scenario is a radiation approach, with chemo as a sensitizer. (This is a new approach that is being tried at Hopkins for certain HPV cases.)
Is your wife's nodule in the actual lung or in the lymph node? Also, your tagline does not indicate HPV+. Best of luck with the PET Wednesday. Please keep us posted. I am happy for you that you have been presented with a plan of action.
Best to you both,
Mary

I'm so sorry to heAr this hopefully it can be removed - will
They follow up further treatment?

Dear Jay,
I am soooo sorry. I cannot even imagine what the 2 of you are going through. It does sound like there is a plan set in motion though. Praying things go well. Please keep us updated. My heart is with you both.
Kathy

I am also shocked to read your latest Jay as I have been keeping tabs on you and Jen on your other thread.
Seems that you are being well looked after by your team and I hope all goes well tomorrow and Friday.
Thinking of the 3 of you and will look for your update soon.
Gabriele

Jay, I am so sorry to hear about the latest not-so-good news. Just when you think you are out of the woods and then this. Hopefully the doctors will find a way to help you deal with this latest twist. Keep you, Jen and little Hunter in my thoughts.

Thanks everyone for their comments & support.

Having spoken to our ENT doctor about the situation - it looks like is the best case scenario in the worst situation possible for Jen at the current stage.

It looks like as the cancer has been caught very early, and they will be able to use non-invasive VATS (Video Assisted Thoracic Surgery) to remove the tumor from Jen's lung which is a positive sign they are going for a cure rather than treatment approach.

However, the very fact that the cancer has spread through to the lung means that there is a very high likelihood of this being an ongoing battle as the chances of this reappearing in various different parts of the body are now extremely high.

We will only know for sure our final treatment method and prognosis once the doctors look through Jen's PET scan results which is scheduled in for tomorrow at our Cancer Hospital here in Melbourne - Peter Mac.

This is what scares me the most and I have yet to see anyone from this forum who has had complete remission after cancer had spread to the lungs which is the case for Jen...

I wasn't expecting anything of this recent biopsy as Jen has showed no respiratory problems or the usual signs of cancer over the past 12 months.. I guess this is why the news this time around has hit pretty hard and I am still trying to cope with the idea that we are now on borrowed time..

Your prayers, thoughts & kind words of advice is greatly appreciated and I will try and keep you all updated as to how this plays out.

Kindest Regards

Jay, Jen & Hunter.

There is someone here who has survived lung mets - she had two nodules one was removed a second shrank with treatment - she is NED today. It was a 3 year battle. My hopes are high that this is it for you. She was also involved in two clinical trials. Hugs.

Jay,
I've been following your posts for months and so pleased until I read this post. It seems like everyone is right on top of this and aggressively planning the medical treatment and outcomes.

If I may digress. I read this in your post, "21/3/13 & 21/6/13: PET/CT Scan + Full Scope - CLEAR! " This is just a few weeks ago; then I read here about results of a biopsy from the bronchoscopy of the lung nodule. Maybe I missed something on the other posts but what happened from all clear to SCC on lung nodule?

I ask as I have two still undefined lung nodules and try hard to put them into a little box and hide it away but now and then I read this sort of recurrence and the fear blows over me and just freaks me out.

I do hope the very best for your family, keep us posted. don

Please consider asking about photodynamic therapy as well. It has a lot of promise with minimal side effects. hugs.

Had our meeting with the Cardiothoratic Surgeon today after the multidisciplinary board got a chance to look through Jen's case and her PET scans from Wednesday.

Looks like the cancer is indeed isolated in the left upper lobe and will be surgically removed next Wednesday - a lobectomy using non-invasive VATS. One level V lymph node showed moderate uptake on the PET scan well away from the cancer so as a precautionary measure, they are also going to remove the rest of the lymph nodes that lead from the neck down to the lungs just in case and will determine whether or not radiotherapy and/or chemotherapy is required once they are able to see if there is any cancer cells in these lymph nodes.

The shocking news was to follow - the doctors were unable to determine whether or not this was a metastases from the tongue cancer or whether it was a new primary lung cancer based on her recent scans & pathology reports. The way the cancer was isolated and formed within her lungs was also very mysterious and hence they have said its pretty much a 50/50 chance between mets vs. new primary.

In the instance of the cancer being a new primary - the chances of cure are very high as it has been caught extremely early. In the instance of this being mets to the lungs, they have given us a 30% 5 year survival rate as long as they do not see any cancer in the surrounding lymph nodes once they remove them via surgery.

They also found out that the SCC was HPV 16+ positive which is the first time we have heard this was the case.

Very confused and don't know how to make sense of all this information.. any experience, knowledge and/or comments that can shed light on this would be greatly appreciated.

Well Jay, this actually sounds positive. Surgery next week is great, they are moving fast which you know is good. I think the removal of the lymph nodes is also a good move.
Try not to focus on the statistics. Charm would tell you you are either a survivor or not.
I have heard that there are a new subset of young women, who do not smoke, being diagnosed with HPV positive lung cancer. Maybe this is a whole new primary, which as you state would be good news from a cure point of view.
Please keep coming here and updating us.
Sending you many positive thoughts. Don't borrow sorrow from tomorrow.
Tammy

Maybe we can assume that being HPV positive the scc will respond well to treatment. There is hope as long as it is treatable. Sending you lots of positive energy.

Jay- First of all, HPV+ and new primary possibility are good news. When my husband's spread was found in late April, the doc said it could be (1)a new primary (best case scenario), (2)a metastasis of the previous SCC, or (3) oligometastatic disease (a metastasis that stays confined to one or two areas). It was confirmed metastasis thru p16 staining of pathology slides. Followup CT with contrast showed no mets to lungs. The metastasis is confined to the lymph node(s). I do not know when you say Jen's is in the lobe if that means it's in the lung itself or if it's confined to lymph node. (is the lobe a lymph node or part of lung?) Because my husband's is confined to lymph nodes, and because it is slow moving (benefit of HPV+) the docs at Johns Hopkins have set a course of 6 weeks of radiation with chemo sensitizer to the chest area.

A very plain-speaking MO at Hopkins said cancer spreads thru lymph system and/or through blood. My husband's is presently confined to lymph. The RO said, "HPV is a gamechanger. Ten years ago we wouldn't have been talking about treating toward cure in lung mets" We have gone from utter devastation to much hope in the last 10 weeks.

I've rambled on way too much, but I am still "high" on the prospect of having a plan in place (as of 18 hours ago) to beat this thing down. Please feel free to send any questions. What Hopkins (and also University of Maryland) are doing is somewhat cutting edge, so am happy to share what I know, if it applies to Jen's case. Can you push to find out if testing is available to determine if it's metastatic or new primary??
Mary

Hi just to clarify... The lobe is in the lungs. The news sounds good. Ignore the odds, and push towards a cure. Hugs.. And so glad they are moving fast.

All four doctors - including the doctor who performed the bronchoscopy said it was either a bacterial infection or Turberculosis at worst based on the CT scans (all three) and even after the scope procedure itself.

The reason why this was the case is because how the cancer has established itself in Jen's lung - the cancer is actually within a pulmonary cavity (a air capsule if you would like to put it simply)!

This means it is impossible to measure the size of the tumor other than the fact that it is at maximum the size of the cavity itself (2-3cm) and that none of the surrounding area including the lymph & blood vessel channels show any traces of cancer.

To put it short - the cancer is completely isolated surrounded by a pocket of air within Jen's lung.

At the same time - the type of cancer is the same between the tongue and the liver and hence they are unable to determine even with further tests whether this is mets or a new primary..

You can now see why I am so confused and baffled by this all...!

Hi Jay,
I don't have a lot to offer along the medical line at this point, but wanted, again, to offer my prayers and support. Thanks for posting an update.
Love to you both,
Kathy

Jay,
Thanks for reporting back. This is all new to me so I have nothing to offer other than my thoughts are with you and your family as you forge ahead into this uncharted water yourselves. Best of hopes and outcomes, don

Wishing the best treatment, and outcome.

Unfortunately, our curative plan of removing the tumor with surgery was abandoned half way through the VATS as they found Malignant pleural effusion once inside which meant that surgery was out of the question.

They did however perform Pleurodesis using Talc powder to ensure that the growth of the cancer in the pleural space is limited as well as ensure that fluids do not build up again in that space.

Looks like this means there is a higher chance it was indeed a mets from the tongue cancer (which was always the gut instinct) rather than a new primary which is also a double whamy..

Awaiting next steps but doesn't look too positive from what I can gather.. Looking at clinical trials and palliative care and any information, suggestions, support and prayers are greatly appreciated.

Jay, Jen & Hunter

Positive thoughts HPV means there is hope they are learning daily how to treat this new form of cancer, keep positive, wishing you Jen and hunter the best.....ken

Oh Jay, I'm so sorry for this news.
I know that you feel absolutely gutted.
I hope you can find a clinical trial or some chemo that will at least buy Jen more time.
I will keep you all in my prayers.
Please continue coming here. You are part of our family and we care.
Tammy

So sorry Jay that things are not panning out as planned. Keeping all three of you in my prayers.

There is hope, Jay . . . . there is always hope. Stay with us and let us know what is happening. I'm sending special prayers for you and Jen and Hunter for some better news and brighter days ahead.

Jay, Im very sorry the surgery didnt go as expected. Keep looking for another option.

Best wishes with everything!!!

So sorry to hear and wish only the best for you and your family. don

Jay I'm sorry for the news - it's all of our nightmares here please ask about photodynamic therapy - hugs.

So sorry to read this. Thoughts and prayers to you, Jen & Hunter. I know having your baby boy to look at each day will keep you both going!

So sorry. I can hear the pain, fear and confusion and am so sad. I cannot even imagine being where the 3 of you are, but please know that you are being held up in prayer and we are here for you.
Love to all of you,
Kathy

I am so very sorry to read you latest Jay. You and Jen must be in shock.
Hoping that a clinical trial or other options present themselves over the coming days.
Sending love and hugs to you, Jen and Hunter.
Gabriele

Jay-
I just read your last post. I am so sorry about the latest news. I am wishing for the very best for you all at this time as you research and evaluate new options for treatment.

Best,
Mary

Appreciate everyone's well wishes and we are still a bit confused as to what is going on..

As per my previous post, the surgery did not go as planned and Jen was given the grim news that the cancer has now turned into something that is non-curable and current treatment regimes will be ineffective.

Basically, we have been told indirectly by the doctors here in Melbourne to make sure our affairs in order as there is nothing else they can do treatment was other than saying it may be worth putting Jen into Palliative care.

This is because they are reluctant to give any Chemotherapy as Jen is currently doing very well physically and don't want to risk losing that for the high toxicity and very little benefit from the chemo which is generally the case for metastatic cancer. The same goes for any treatment required to remove the tumor from Jen's lungs and have advised against tomotherapy and/or surgery to remove this.

The MO also said that there will be traces of microscopic cancer in and around Jen's body despite nothing coming up from the recent PET scan, and that it is only a matter of time that this thing will spread to other parts of her body.

However, they say there was no growth in the tumor since her first CT scan in May compared to the latest ones mid July which is also a bit baffling to say the least especially when they say Jen's cancer is very aggressive!

Furthermore, the pathology reports indicated that there was no evidence of cancer from the fluid extracted from the pleura although our MO dismissed this as a "false-positive" and told us that it is very likely there are cancer cells there.

You now know why we are so confused and Jen & I have decided to keep positive and not let the grim news overwhelm us especially when she is doing so well physically for the meantime and the doctors here in Melbourne are basically saying to us "We don't know what's going on but we know the cancer is aggressive so we can't cure you".

Hence, we have decided to take this treatment back home to Korea to request further opinions and there are highly regarded doctors that we have already spoken to who are still not sure this is in fact cancer that has spread and still think it is a new primary which means we may still have a chance to beat this thing..

Looking into clinical trials at the same time (I am fascinated by Reolysin and would like to ask those on the board if there are any who have any further info on this) and we have our first round of our new doctors appointments already scheduled for the 16th & 21st of August.

As we enter another important phase with trying to figure out this riddle, please pray for our family and any information or assistance over the clinical trial or shedding more light over this situation would be greatly appreciated.

Kindest Regards
Jay, Jen & Hunter

Thanks for the update! Yes, I can certainly understand your confusion with Jen's diagnosis! Im very glad to hear Jen is physically doing very well. With her feeling ok, it helps her to have a better outlook about the entire situation.

From what I know of Reolysin, it is still being trialed here in the US. It is showing some promising results. It could be more readily available in other countries, Im not sure of their procedures with bringing new drugs into the market for the general public.

As always, Im wishing you, Jen and Hunter all the very best with everything.

I don't blame you one bit. It's easy for these docs to say "give up, there's nothing that can be done" but I wonder if THEY were in your shoes, would they?

Jay,

What a tough situation. I'm glad you are looking into other options. I don't have any sound medical advice to give you, but I will keep your family in my prayers.

Good luck with the 2nd opinion. What one doctor or hospital may not be able to treat, another may. You both will be in my thoughts and prayers.

Let's hope that the doctors in Korea will find a way to deal with the situation. You and your family are always in my thoughts during this very tough time.

You got this Jay. Love is strong, so is belief. We are on that precious "extra" time....for a year now! More opinions, more research, more options.

Best of Luck and good luck on the second opinion, the up and down and inconclusiveness of it would have me seeking out a second opinion as well. Hugs

Kudos to you Jay. So pleased you have found the option of a second opinion and treatment in Korea. You sure do need answers and clarification.
Love is a very powerful thing. Not to be underestimated.
In my thoughts and prayers, Tammy.

Jay - I'm so glad you are considering the second opinion, especially in view of the positives like how well Jen is doing physically, and even though the doctors have expressed some uncertainties which they see as negatives, these very same uncertainties can very easily develop into more positive outcomes. You and Jen have every reason to pursue getting more answers to your questions and to keep hope alive! Plus you have prayers and good thoughts coming from everyone here!

Yes more than anything you want to know for certain, this emotional turmoil can do a number on your wife's emotional state and mental health - with very much effects physical health, plus ambivalence and uncertainty tells me there is definite hope. saying well we're sure there is cancer in there even though we didn't find it tells me they are playing with crystal balls and basing their dx on experience rather than definitive fact - that's a slippery slope in that she may have something going on that's unrelated, or something that is clearly treatable. Hugs and hoping to hear positive news soon.

Hi Jay, thinking of you and Jen. Wondering how things are going for you in Korea. Have the Docs come up with a diagnosis and treatment plan for Jen.
I'm sure that bring closer to family is of itself a great help.
Please let us know how it's all going when you have time.
Tammy

Thinking of you all Jay. Anxiously waiting for an update.

Thanks everyone for their well wishes and we are keeping strong despite the difficult situation Jenny currently faces.

Since my last post, we have met three more specialist doctors who have pretty much said the same thing as per our doctors back in Melbourne - the cancer is now terminal and we have two options:

(a)Receive chemotherapy (Combination of 5FU / Taxatol + Erbitux) in hopes of slowing down the spread of the cancer and reducing the size of the tumor in the lungs. Unfortunately, the toxicity from this treatment regime is incredibly high and the benefits from such treatment are generally minimal and will have adverse affects on Jen's currently good health status.

(b) A wait and see approach as the cancer is currently in idle (no growth since May till now) and Jen is showing no symptoms whatsoever and is in good health despite the poor diagnosis. Monthly CT scans + check-ups will be scheduled and Chemotherapy + Tomotherapy will be used as a palliative option later down the track if required.

Jen & I are leaning towards option (b) at this point as the cancer is not causing any issues at this point and is in a holding pattern. A final decision on course of action will be made once the results of our next CT scan scheduled for late September is received to see if the cancer remains as is or shows additional growth.

In the meantime, we have decided to use this time to go enjoy our time with Hunter and ensure we do everything possible to make sure Jen continues to feel fit and healthy. Going on a strict diet (Paleo) + routine exercise + having a good'ol laugh with Hunter (most important!) will be our treatment plan for now and I am confident that this will have much higher chance of beating this thing than any chemotherapy regime.

I guess the unknown of how long this holding phase will last is what concerns us the most at this point of time (it may be a few months to many years.. the doctors are unable to say) but at least we have some sort of plan and course of action to adhere to during all this confusion.

We thank everyone who have been praying for us and wishing us luck. I guess one thing that I have learnt from this journey is that there is a lot of good people out there in the world and it makes us feel that much more at peace that Hunter will still be living in a society where good still prevails.

Jay,
I'm sorry to hear the results of your consultations. You have great strength and passion and focused on the right things. I pray for you and your family. don

Jay,

I'm so sorry to hear that you and Jen are dealing with such a difficult diagnosis. Our family will keep you in our thoughts and are praying for Jen's continued strength and good health.

Thanks for getting back to us, Jay. And so sorry for all the uncertainties you and Jen have had to face. I am so hoping and praying that the "holding pattern" you describe for Jen will continue to help her feel fit and healthy and that there will be good times and good news ahead for all three of you. Stay strong Jay, and stay with us.

I'm so sorry too. No option of surgery? Did you go back home for your second opinions or stay in aussie land?

Jay,
I'm just curious, what chemo did Jenn get in the beginning? Your signature says 7 chemo, but not what type.
Thanks,
Kathy

Thanks for your comments and appreciate your well wishes.

Kathy - she received 3x cisplatin then switched across to
carboplatin due to ringing in her ears.

Cheryl - we have spoken to 3 separate oncologists - one from the UK & two from Korea. All three have said no surgery or radiotherapy as the toxicity involved will not be worth the outcome.

I think metastasis is the dreaded unknown territory which everyone fears and doesn't quite know what its about. Will try and explain things once we have attended all of our initial meetings (we have two scheduled for this week) and I get a chance to summarize things from my end.

Great - but she iS young, and you have a child - I would push for whatever you can. Hugs and prayers to you.

I fail to see what is so great about the situation Cheryl?

Did I miss something?

Great that you have two meeting scheduled for this week hopefully they will come up with something - I'm an optimist - I am hopeful to the bitter end. She's so young I would really push for something. Clinical trials or whatever. We've had numerous people here with recurrences and they've been treated - It doesn't make sense that in one country they will try whatever they can, and in others they tell you go home you're palliative. Hoping for the best for both of you - whatever that may be.

Thinking about you and your family, prayers coming your way, Ana

Jay, I've been keeping you and your family in my prayers! Never give up hope!

Jay, this just sucks.
You and Jen are right to do what you think is best for the both of you. I am so glad Jen feels well currently and hope this continues for a long while.
Honestly, I don't think any of us truly knows how we would react or what decision we would make unless we are living it. It is so hard.
Enjoy that youngster together, make memories.
I am thinking of you all,
Tammy

Hi Jay, just checking in. I've been thinking about you guys a lot lately, and I'm hoping your appointments bring some good news.

Hi, Jay,

I just read this entire thread and I think you have been an amazing partner to Jen in seeking so many opinions - and in two countries. I guess there is always "something else" that some doctor somewhere might do but the medical consensus you've described has led you to decide to enjoy your life with Jen and Hunter without further treatment at this time. That is a decision you reached based on an impressive amount of medical advice and I hope you are at peace as a caregiver.

Best wishes - Sophie H.

We met our final (5th opinion!) oncologist last week and also did a PET/CT scan again to see where the tumor is at.

Different from the previous 4 doc's, this one in particular was very keen to get Jen started on the Chemotherapy which we have our reservations on. Her recommended treatment was Erbitux + 5-fu + Cisplatin over 6 cycles as a means of trying to keep the cancer at bay. From the literature, it is a brutal regime with slightly over a 35% response rate with a PFS of only 4 months even if it works.

I know that everyone responds differently and statistics are only statistics but please note that the best case scenario is not a cure but a means of extending life at the expensive of quality of life - something we still have at the moment with Jen's symptoms very minimal. Hence, although some of you may be baffled with us playing the wait and see game - the view of using chemo & radiation as a means of palliative care has been shared by 4 doctors spanning across 4 very well known cancer hospitals in Australia, Korea & in the UK.

Final decision on how we will move forward will depend on the results of this scan which we receive on the 12th of September and if there is no growth in the tumour or spread to other parts of the body, it will be most likely we will wait and see what happens and will continue on enjoying our days with Hunter & the family.

In the meantime, we have our little boys 1 year birthday tomorrow which we plan to make the most of with our friends & family. I would love to say that we as a family will be able to enjoy at least another 5 of these together but it pains me to think that the odds of this happening are stacked against us..

All the more to enjoy and make sure we make the most of this one!

Will keep you posted on the final plan once we have our next appointment in a few weeks time.

Jay, Jen & Hunter

Dear Jay,

Happy birthday to Hunter and a special hug and kiss to Jen and you. Have a blast!

Jay, my heart goes out to you and your family. I am sitting here with tears in my eyes to think of the choices confronting you. The fight against cancer can become so consuming that we can forget it's really a journey to live the richest life we can.

<<<HUGS>>>>

Mama

Thanks so much for checking in and keeping us posted here. You have done as much as is humanly possible to help define the very best path for your family. Wishing you the very best in enjoying life to its fullest.

Jay,
I want to wave a magic wand and make this tumor go away. So sorry to hear this obstacle your family faces. Prayers to you and your family. I am still hopeful for you and Jen and Hunter.

Jay, know that we all support whatever choices you make as a family.

It was good to hear from you, Jay - and to know that for now, Jen's symptoms are minimal. I hope that Hunter's birthday is a very special one for all three of you and I'm still praying that there will be better days and better news ahead.

Hi all,

It has been a while since my last update but I thought it might be best to keep the board updated as I know there are quite a few people who have been wondering how we were doing.

Unfortunately, things have taken a turn for the worse with the cancer now appearing in multiple spots in Jen's lungs and a lymph node on the opposite side of Jen's neck.

Symptoms have started to appear due to the increase in the main lung tumor and it looks like we have now run out of time with our 'wait and see' approach with the cancer now moving aggressively.

We have managed to keep off chemotherapy till now and we both still feel that this was the right option as she has been able to enjoy quality time with Hunter over the past couple of months and live a normal lifestyle until a few days ago which I don't think would have been the case if we had started chemotherapy a few months back when she was first diagnosed.

The oncologist has recommended that we now start 1st line chemotherapy with cisplatin + 5-Fu followed by a clinical trial cetuximab (Erbitux) + BKM 120 (Buparlisib) which is a relatively new drug for metastatic cancer should first line treatment fail.

Will keep the board updated as to how we go once we start as I know there aren't many of us who have gone through this regime and hopefully this treatment will be able to relieve Jen of her symptoms and earn us more time while new treatments and trials continue to become available for patients like her.

Your prayers and thoughts have always been a huge comfort for us and I will continue to provide what information I can moving forward.

Jay

I wish and pray with all my heart that things go well, Jay. Love, prayers and thoughts to you, Jen and Hunter. Linda

Sending many prayers for you and Jen and Hunter that the treatment will be successful. Sounds like you and the doctors are on top of this for all the latest and best care possible and for keeping strong hopes alive. THanks for the update.

Thanks for the update Jay.
Enjoy every precious moment together.
Thinking of you all,
Tammy

Let's hope this works.

Prayers and warm thoughts coming your way. Hopefully your wife's treatment will not be as debilitating as expected and that you all get to enjoy your time together - and most importantly I hope it is effective. Thank you for updating. And take care

Jay,
Thanks for the update. I'm sorry the hear the disease is progressing. Hopefully, the chemo can shrink and stop it from spreading. Prayers to you and your family. don

I have been wondering about you so thank you for the update though I wish it was better news. I hope and pray that the treatment slows the progression and that Jen is able to tolerate the combination better than expected. Keep looking at Hunter through the really hard times and knowing it is all worth it for him and the both of you.

Jay, so sorry to hear that Jen has to go back into treatment. I hope and pray that it works for her. From following your posts, I know you have the mental and emotional toughness that is required of the caregiver in these very difficult circumstances. I will be rooting for you, Jen and Hunter.

Good luck with the new treatment.

Hi Jay,
Thank you so much for the update. I have been wondering how things were going. So sorry the news is not the best though. I am glad your family has been enjoying some quality time and are now ready to get back into fighting mode!! Give it all you've got!
Will be watching for the next update.
Blessings,
Kathy

Jay, you are all in our thoughts. I just wish so badly that there was something we could for you.

Dear Jay,
My thoughts are with you, Jen and Hunter.
Wishing you all the very best for her chemo treatment and that is not too hard for her to tolerate.
Love and hugs,
Gabriele

Im so sorry to read about Jens problems. Wishing you, Jen and baby Hunter all the very best with everything.

Jay,

You, Jen and Hunter stay in my thoughts and prayers.

Jay,

Thank you for taking time to update us. You are all in my thoughts and prayers. My very best to you, Jen and Hunter.

Mary

Unfortunately, Jen passed away on the 29th of January 2014 with family and loved ones by her side.

It has taken some time for me to find the courage to update the board and let everyone know that this disease is a killer and I hope that more research and funding goes into preventing future cases like ours.

Seeing someone as active an full of life such as Jen to someone in such agony towards the final months was heartbreaking to say the least but I find strength in knowing she is in a better place now and I have no option but to keep strong for our 19 month old son - Hunter.

I thank everyone on this board for their invaluable support and contributions over the past 2 years as it has been used as a trusted resource time and time again when making the right decisions for my wife.

Hopefully, my posts and comments provided here will give others guidance and some insight which may be beneficial in their fight against cancer as well and I wish everyone good health and the very best throughout this difficult journey.

Kindest Regards,
Jay & Hunter

Hello Jay,
Thankyou for coming here and updating. I have been thinking of you all.
Yes, this is truely a terrible disease and your news is so sad. Jen fought hard and I know you walked beside her everyday.
I wish you and Hunter joy and happiness going forward. Treasure all those loving memories you have of Jen.
Above all , enjoy your Little Man and be happy.
Tammy

Jay, I am so sorry to hear your sad news!!! Im just beyond words right now. I had wondered from time to time how Jen was making out hoping no news was good news.

In time the memories of happier, healthier times will help to ease your pain.

My deepest condolences to you, Hunter and the rest of your family.

May Jen rest in peace.

I am so sorry for your loss. There is nothing I can say that will make this better so I will leave it at that. hugs and blessings to you and your son, know in your heart you did all you could.

Dear Jay, I am so very very sorry for your loss. Since you last posted, there hasn't been a day when I have not thought about you and Jen. Let the thought that you were there for Jen from the first to the last be your consolation. You did all that was possible. Please accept my condolences and please give little Hunter a hug from me.

Jay I was hoping no news was good news and kept checking her often as I kept thinking about you and your family. I am so terribly sorry to hear about Jen. It makes me so sad to know there is another young child who will grow up without of their parents because of this awful disease. Hunter is here for a reason and is Jen's legacy. You will get through each day and all the dark times by looking at him. Honor her memory so he knows how wonderful his mother was and how much of a fighter she was through it all - she is a real hero for him!

I am so sorry to read your news that Jen passed away in January.
Sending you and your family my sincere sympathies Jay.
There is nothing more I can add that has not already been said. Love and hugs to you and Hunter.
Gabriele

Jay,I am so so sorry to read your news. My prayers and sympathy go out to you and Hunter. You were an amazing caregiver to Jen.

All my best,
Mary

Dear Jay,

I am so very sorry to hear about Jen. This disease is just so unfair especially when it claims the life of one so young and leaves a young child without his mother.

Thank you for taking the time to let us know. I know it must be so hard for you having watched this disease claim the life of your precious Jen and not being able to stop it.

Please accept my condolences and give Hunter a hug from me.

Dear Jay,
All I can say has been said. So very sorry to hear your news. I had a feeling awhile back when I sent you the email that things weren't ok. just a gut thing. I wish I had been wrong. I truly pray that you will be able to eventually find joy again. I'm sure little Hunter keeps you smiling.
Thank you so much for coming back here to let us know.
Blessings to you and hunter,
Kathy

Jay,

So sorry to hear about Jen. You did everything humanly possible to find a way to stop the cancer. You have Hunter to protect and raise as Jen would have done.

Thank you for posting.
Don