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Joined: Aug 2007
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"OCF Down Under"
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Dear Jay,
My thoughts are with you, Jen and Hunter.
Wishing you all the very best for her chemo treatment and that is not too hard for her to tolerate.
Love and hugs,
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

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Administrator, Director of Patient Support Services
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Im so sorry to read about Jens problems. Wishing you, Jen and baby Hunter all the very best with everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2011
Posts: 267
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Joined: Apr 2011
Posts: 267
Jay,

You, Jen and Hunter stay in my thoughts and prayers.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
Joined: Apr 2013
Posts: 76
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Joined: Apr 2013
Posts: 76
Jay,

Thank you for taking time to update us. You are all in my thoughts and prayers. My very best to you, Jen and Hunter.

Mary


Mary
Caregiver to husband, 60
Dx Sept '12 SCC BOT T2N2aMo, Stage IV, HPV+
Oct '12 Sub.Gland transfer
Nov-Dec '12 IMRT x 33 + cisplatin x7
March '13 PET/CT: 2 spots on lungs; (BOT & neck lymphs NED)
April '13 Biopsy: 1 = malignant right hilar lymph (met from HNSCC)p16
9/13: 33 rounds IMRT to lungs; carboplatinx7
CT w/contrast 12/30/13: 2 spots left hilar lymph. biopsy confirms SCC
30 rounds IMRT to left lung; treatment ended 5/29/14
Sept 2014--CT clear; December 2014 CT clear
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Posts: 145
"OCF Down Under"
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"OCF Down Under"
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Joined: Sep 2012
Posts: 145
Unfortunately, Jen passed away on the 29th of January 2014 with family and loved ones by her side.

It has taken some time for me to find the courage to update the board and let everyone know that this disease is a killer and I hope that more research and funding goes into preventing future cases like ours.

Seeing someone as active an full of life such as Jen to someone in such agony towards the final months was heartbreaking to say the least but I find strength in knowing she is in a better place now and I have no option but to keep strong for our 19 month old son - Hunter.

I thank everyone on this board for their invaluable support and contributions over the past 2 years as it has been used as a trusted resource time and time again when making the right decisions for my wife.

Hopefully, my posts and comments provided here will give others guidance and some insight which may be beneficial in their fight against cancer as well and I wish everyone good health and the very best throughout this difficult journey.

Kindest Regards,
Jay & Hunter


6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away
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Posts: 1,024
"OCF Kiwi Down Under"
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Posts: 1,024
Hello Jay,
Thankyou for coming here and updating. I have been thinking of you all.
Yes, this is truely a terrible disease and your news is so sad. Jen fought hard and I know you walked beside her everyday.
I wish you and Hunter joy and happiness going forward. Treasure all those loving memories you have of Jen.
Above all , enjoy your Little Man and be happy.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Posts: 10,507
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Jay, I am so sorry to hear your sad news!!! Im just beyond words right now. I had wondered from time to time how Jen was making out hoping no news was good news.

In time the memories of happier, healthier times will help to ease your pain.

My deepest condolences to you, Hunter and the rest of your family.

May Jen rest in peace.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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Posts: 5,260
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I am so sorry for your loss. There is nothing I can say that will make this better so I will leave it at that. hugs and blessings to you and your son, know in your heart you did all you could.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Posts: 1,275
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Joined: Oct 2012
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Dear Jay, I am so very very sorry for your loss. Since you last posted, there hasn't been a day when I have not thought about you and Jen. Let the thought that you were there for Jen from the first to the last be your consolation. You did all that was possible. Please accept my condolences and please give little Hunter a hug from me.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Joined: Jan 2011
Posts: 123
Senior Member (100+ posts)
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Posts: 123
Jay I was hoping no news was good news and kept checking her often as I kept thinking about you and your family. I am so terribly sorry to hear about Jen. It makes me so sad to know there is another young child who will grow up without of their parents because of this awful disease. Hunter is here for a reason and is Jen's legacy. You will get through each day and all the dark times by looking at him. Honor her memory so he knows how wonderful his mother was and how much of a fighter she was through it all - she is a real hero for him!


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
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