| Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | You should be seeing a dental oncologist, if you are he's probably thinking 1.5 weeks in is still safe because the real pain usually doesn't start until around week 3 - however - your having chemo too I assume, so your immune system will be compromised, add to that the possibility of being hyper sensitive to rads - some people are... And it could be very uncomfortable, plus any extra small nicks while cleaning could cause infection etc... I'm with the others push to be cleaned earlier. 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I had a dentist, a qualified person, nice guy, who did my pre radiation fillings, extractions, but he was not a dental oncologist. I did not inquire about any dental trays, special fluoride nor was it recommended, except giving me chorhexadine, even though I knew of the others preventive measures. I was scared of any additional medications, doctors, after being beat up for a year, and went the local route with treatment, instead of my CCC. As such, other contributing factors, all my teeth need to be removed sometime soon, plus doing HBOT, 20 prior, 10 after, which I did two years ago. I'm just trying to hold off as much as posdible with no dental insurance now, plus not wanting surgeru surgery until after my Pet scan, but now is effecting foods I can eat, and pain sometimes. Proper oral care, and pre-radiation dental care is very important. If there is doubt with anything, radiation can be delayed. Once radiation is given, it can't be taken back, and should not unnecessarily be stopped.
I use biotene dry mouth products, mouthwash, toothpaste, gel, spray, gum.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jul 2013 Posts: 22 Member | OP Member Joined: Jul 2013 Posts: 22 | David, it is just a cleaning. I already have my trays and I've already had xrays and an examination, my teeth are healthy. Before my surgery in the hospital the oral surgeons also did an xray to check for cavities as well. So yes, it is just a cleaning.
Cheryl, I'm fortunate enough to not need chemo as well. All the margins in my lymph nodes came back clear so chemo was taken off the table. I'm in for 38 radiation treatments.
I will definitely be looking into the biotene. I already wake up with pretty bad dry mouth, I want to counteract that as much as possible.
Josh, 24, don't smoke/drink
5/29/13 Biopsy 6/3/13 DX stage 3 HPV- SCC at BOT 6/14/13 Hemiglossectomy, neck dissection, second surgery to add stitches 6/21/13 PEG 6/23/13 Incision opened to drain infection 6/26/13 Discharged from hospital 7/22/13 IMRT starts
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Typically, some platinum based chemo accompanies the radiation as a radio-synthesizer that improves the performance of the radiation treatment. It can also be given to help "mop up" any microscopic stray cancers so there are at least two reasons why chemo is done along rads.
Cisplatin and carboplatin are the most common chemos offered during rad treatment. One big bag every three weeks and smaller weekly dosage is also an option.
Personally, I would fee more UNcomfortable that chemo is not part of the radiation treatment. Check it out some more if you of the "hit it hard NOW" philosophy camp. If anything, rads are usually dialed down or out when someone young gets cancer as it permits more options in the event of cancer returning later. don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | Added to DonFoo's excellent message, you should be aware that the purpose of the -platin chemo is to prevent cancer cells from dividing (reproducing) during the attack on them with radiation.
You seriously want to question your lead oncologist about this omission, and don't accept anything but a clear explanation that you are comfortable with, if they persist in not giving you the chemo.
The worst of the worst chemo is over and just a memory after 90 days.
In my view, it would be very short sighted to agree to avoid a relatively short (in the context of the rest of your life) unpleasantness in favor of a risk that could lead to a recurrence of the disease.
You do not want a recurrence, trust me on this. You are young and will throw off the effects of the treatment quickly. Don't blow your ONE chance of a long lifetime, for a reduction (NOT an elimination) of the (short lived) unpleasantness of the treatment.
Please!
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Hi Josh, just wanted to check in and see how you are faring. I think you're about half way through and getting to the tough times. Just wanted to let you know I'm thinking about you and wishing you the best.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Dec 2012 Posts: 16 Likes: 1 Member | Member Joined: Dec 2012 Posts: 16 Likes: 1 | Hey Josh! First of all, I'm sorry to hear that you have the big "C". But I promise you, you can get through this! whatever you do keep pushing! Radiation will be tough but it will be over sooner than you know it! I'm also a youngy! I was diagnosed in November 2012 just a few days after my 19th birthday. But hey! I made it through! You can too! You can email me if you have any questions or just need to talk!  I'm here for ya! 
Shelby, 28 yrs old, stage 3 tongue cancer, non- smoker, not HPV, 12/27/12 partial glossectomy and neck dissection, 1 lymph node positive, Chemo and Rad 5 days a week, 32 treatments, feeding tube in, finish treatment 3/22/13  back to normal basically
| | |
Forums23 Topics18,248 Posts197,137 Members13,320 | Most Online1,788 Jan 23rd, 2025 | | | |