| | Joined: Jun 2013 Posts: 2 Member | OP  Member
Joined: Jun 2013 Posts: 2 | Hello,
After my friend gargles and rinses his mouth, his tongue is burning. Have any of you found a remedy?
MLB | | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Need more info. What is he gargling with? Plain water, mouthwash that may contain alcohol, soda/salt solution?
What are his other symtoms? Is he being treated for oral cancer? Does he have chemo or radiation treatments?
What sort of ulcers or sores or other things going on in his mouth?
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | I think this is related to your other posting with the pain, mouth ulcers, after surgery, recent radiation treatment ending two weeks ago. You need to see what the ulcers are from, and treat them appropriately, otherwise the pain may not resolve until they are, when rinsing. A recurrence or secondary tumor needs to be ruled out also, if not already done. Don also made very good points.
Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Without any background info, Im not sure if this will help but I hope it will.
When I would eat something that burned my sensitive mouth I would drink chocolate milk. Dairy foods help to neutralize the burning sensation. Things like milk or yogurt may help.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Sour cream too, but sometimes, milk products may burn due to the lactic acid. Rinsing with baking soda or glutamine powder may also help
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jul 2013 Posts: 17 Member | | Member
Joined: Jul 2013 Posts: 17 | Im a year out of surgery and 8 months out from radiation and my tongue still burns a bit when I eat some foods...Acidic, spicy foods are the worst and toothpaste too...I agree, dairy products help..I use sour cream on almost everything now and drink alot of milk..It's weird though, before radiation, I really didn't like milk all that much, now I like it alot..Tomatoes too..Didn't like them at all before radiation, but now I like them, even though they burn a little on my tongue and they seem to tighten up the side of my tongue that was removed...So try the dairy products and stay away from acidic and spicy foods...Good Luck..
DX-JUNE 22, 2012
STAGE..III
HNC--TONGUE
HPV--QUESTIONABLE
SURGERY...JULY 17TH, 2012
40% OF TONGUE REMOVED
FREE FLAP FROM MY LEFT FORE ARM (DIDN'T WORK)
RND
RT
XERSOTOMIA
VERY BLESSED
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Sow,y you get back some of your tolerance for retain things - in a week I'll be 27 mos out of treatment. I still have trouble with acidic and salty foods and spicy heck no! But it has gotten better. I find over the past few months my mouth has gotten a little less sensitive... good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2013 Posts: 11 Member | | Member
Joined: May 2013 Posts: 11 | This receipe helps: 1tsp. baking soda
1tsp. salt
1quart water
Mix together-Rinse & spit several times a
day.
Take care!
1/31/13 CAT scan right tonsil, thyroid, lymph node,brain 2/5/13 MRI brain-no tumor 2/15/13 surgery,biopsy,removed 1/2 tonsil. 2/28/13 PET, diagnosis Oropharyngeal cancer stage IV 3/12/13 PEG 3/19/13 chemo(7 total) 3/22/13 radiation(35 total) 5/10/13 last treatment 7/29/13 2nd PET scan- CLEAR!! 10/28/13 PEG removed smoked 20 yrs ago 54 | | |
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