| | Joined: Jun 2013 Posts: 20 "OCF Canuck" Member | OP  "OCF Canuck" Member
Joined: Jun 2013 Posts: 20 | Hi Christine,
Thanks you for sharing. I do keep busy but the ear and throat pain and temple pain are so hard to ignore.
I have a busy day planned tomorrow and I guess the worse part will be the waiting after the biopsy. I just hope that if it is serious, I'll know before the end of the week. I think you are so courageous, going through all this three times. I am humbled by your story as well as the other members.
I feel calmer tonight.
Again, thank you so much.
Chantal | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Chantal lit could be a number of things don't give over to the fear as it just makes things worse. Chances are its not cancer, but you will not know for a few weeks either way. At this rate you'll fall apart before you even get he results. Most biopsies take up to 2 weeks for a defituve dx - wood luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Chantal,
As Christine and Cheryld have said, please do yourself a favor and try not to think about "it" as much as possible. It will not change anything and it can't do any good. My ENT said "I'll put a RUSH on your biopsy results" and it took 2 weeks!! Some rush...
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Jun 2013 Posts: 20 | Thank you Cheryl and David, that is very nice of you. I will try and not let it get to me. It is hard, but I'll keep busy.
My doctor told me that if it is something cancerous, I'll know within a couple of days.
I'll let you know how it goes.
Thanks again for calming me.
Chantal | | | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | With my tongue lesion, we knew cancer during surgery but details later. The surgeon had to know how much to remove once the quick biopsy showed cancer, so he could aim for clear margins. Then all the pieces were tested more thoroughly after, and those results took longer. So you can have quick and slow results at the same time! Hopefully you will learn enough to ease your mind tomorrow. Have you got someone to go with you, is it outpatient?
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
| | | | | Joined: Jun 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Jun 2013 Posts: 20 | Hi again,
The biopsy went well and my ENT says that he is 95% sure that I am ok. He says that he has seen so many that if he had a doubt, he would not have told me anything or he would have said that he is not sure. He also mentioned that he would say 100%, but he is not allowed. I will see him in two weeks for the official results.
He says stop the worry and that I am fine. The lingual tonsil is inflammed, but no swollen nodes so he says maybe I always had one side bigger than the other and that the ear, throat jaw pain is most likely tmj.
I will let you know the definite results in two weeks, but it is looking good and I hope that he is right.
Bless you all.
Chantal | | | | | Joined: Jun 2013 Posts: 20 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Jun 2013 Posts: 20 | Thank you,
I read your message this morning before the biopsie and it calmed me.
Chantal | | |
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