| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Thanks for posting. Yes, a better read from a respected newspaper.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jan 2010 Posts: 12 Member | Member Joined: Jan 2010 Posts: 12 | [quote=littlebird]Decent article in today's New York Times. Comments are moderated, fyi, so perhaps better than in some other papers. http://well.blogs.nytimes.com/2013/06/10/oral-cancer-sneaks-up/ [/quote] Thanks for the link. Definitely a better article! From the article- [quote]However, such �fairly modest changes� in sexual habits do not explain why the cancer risk has doubled or tripled over the years, said Gypsyamber D�Souza, a viral cancer specialist at Johns Hopkins Bloomberg School of Public Health. It has risen the most in white men 45 and up. The older age is explained by the fact that, like cervical cancer, it can take decades to develop.[/quote] I wish they would do better research on the person's life style before cancer hit them. We had a post on another board to find similarities in everyone diagnosed; every one posted about an immune hit; usually getting sick; then some type of accident. With my hub; he was working really hard each time to catch up after losing work from being out. He was more stressed & slept less. My son's aunt was just diagnosed with lung cancer; her story is similar; so was my dad's who passed from leukemia.
Last edited by Roselvr; 06-11-2013 03:39 PM.
Aug 09 - 3 ultrasound - 7CT - 13 ENT needle biopsy 1 - 19 MRI - 24 ENT n. biopsy 2 - 31 ENT results - Sept- 2 PET - 9 ENT #2 - 22 Rt rad neck dis; rt tonsil & PEG - Nov 4 33 rads; 3 chemo - Complete treatment 12/24/09 - 2/23/10 PEG out!
| | | | Joined: Mar 2013 Posts: 21 Member | Member Joined: Mar 2013 Posts: 21 | You're welcome. It's interesting observing the reactions since Michael Douglas went public(ish). I'm glad that I didn't see the other articles and related comments.
Little Bird, CG to mother, diagnosed March 15, 2013, age 70, non-smoker, non-drinker BOT, HPV+ Cisplatin and 35 days of radiation, completed June 13, 2013. Looks like they got it all. (knock on wood) | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 |
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Very good article, thanks Gabe. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | It may be a function of Google but it seems the vitriole around Michael Douglas' admission of the cause of his cancer has died down a bit and a sense of reason has returned.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | It really doesn't matter if the topic is the latest real or made up political scandal or Douglas's comment. The Internet trolls for the most part only show the stupidity of the bulk of American's commenting online- not only how little they know, but how often their prejudice, bigotry, and willingness to say the stupidest things dominates. This is what living behind a blind screen name affords you, the ability to say whatever you want without thought of other's feelings or your impact on them, or to promote lies and propaganda, to others. They eventually crawl back into they cowardly holes when they can't bait anyone into a fight any longer. Thank God that the Douglas thing has finally reached that point and a serious discussion can take place. But there is little question that while he and his wife paid the price for what he should have had stated in a more complete and articulate way, he has raised awareness that was much needed. Now we need to fill the opening with good solid information. I just (as this was all breaking) edited and added to the OCF HPV pages. In one hour after we were mentioned in the Huffington Post story, we had 14,000 hits on that one page of our web site. That's not a typo, 14k in one hour, and it went on for days like that.
Last edited by Brian Hill; 06-14-2013 09:36 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Well said, Brian. It's good to see that the expertise of OCF is acknowledged by the public.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Everyone now needs to watch MD and his familys "6" as no matter how stated by MD he put OC out in the public domain and it is up to us to now fill the fox holes and advance the truth in our WAR!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Jan 2013 Posts: 57 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Jan 2013 Posts: 57 | Was front page Vancouver sun today 
46 yr old non smoker moderate drinker Lump on neck Dx branchial cyst by fna mar 2012 Op to remove dec2012 biopsy back hpv 16 scc Starting rads jan 31 no chemo docs say? Finished mar13 Pet scan june 30 NED :))) Back to work and enjoying life Checkup aug 12 all good
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