| Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 | I will be thinking of you. Appears you have a road ahead of you. 2 Rad tx tomorrow and week 1 complete. Today I fought back after a tough day yesterday. Was able to work 7 hours. Chemo and rad days take it out of you.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | One foot in front of the other. Eyes ahead. Don't stop till you're on the other side of the valley! Or better yet...Kick cancer's A$$!
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Be realistic too. There are only so many productive hours in a day. I forgot how much of a real day is consumed with chemo and radiation treatments. There were some days it was 6 hours just to get through these basic treatments due to holiday schedules then backups in the labs, etc. Hardly realistic to think you gonna get a 7 hour work day piled in there too, go easy on yourself. Rest is the best medicine your body can use right now. don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 | Thank you for the encouragement, caution and advice. Just to clarify Tuesday is my chemo rad day. So Wednesday after rad I was spent and slept the day away. Yesterday was rad and then I worked after that. Just closing out some projects and final delegations. I only expect to work 2 maybe 3 afternoons next week and then take my leave of absence.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | The other factor is risk of infection due to a compromised immune system from treatment, commuting to work in public transportation, if so, working around other people at work that may be ill, but most of us go to treatment everyday at the hospital anyway, which has their own risks too. Just something to consider. Pre-cancer, I lived in Manhattan, walked to work, had no flu, cold etc. for years, then I moved to the suburbs, traveled by crowded bus, and got sick more often lol, go figure. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Because he is in the Cetuximab group, James is less likely to be immuno-compromised than someone in the platinum-based arm.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Right Maria, but one can be immune compromised even before treatment due to the body fighting cancer, other medical cinditions. Radiation effects the white blood cells too, even RBC. Erbitux is not without side effects either, which some weakens the immune system: Rash, generalized weakness, malaise, fever, low magnesium levels. Less common nausea, vomiting, distress, constipation, poor appetite, headache, abdominal pain, nail or toenail disorder, mouth sores, seelling, difficulty sleeping, itching, low red blood cell count (anemia), infections, Others as well. I forget my CBC, but needesd a blood transusion due to low hemaglobin, RBC. Raised creatine, which measure the kidney function. Any of the infection can become systemic. http://www.erbitux.com/main.aspx
Last edited by PaulB; 06-07-2013 11:09 AM. Reason: Erbitux link
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 | Understood and appreciated. On the brighter side week 1 is complete. 5 more weeks for Rad and 6 more for chemo.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 | Had a great weekend and started week 2 of TX today. Just rad and now my throat is a challenge. Could not eat all of my dinner and switched to rice only. Minor irritation from that. Monday and first punch is thrown. Dawned on me that no day/week will be the same for awhile. Did manage diversion by working a few hours though.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | If you can still swallow suck up the calories via protein shake... good luck with the rest of treatment
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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