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| Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Mariaxx,
I just read the thread. I just want to be clear on what I just read. You had SCC. They removed the cancer, you never had to have treatment and you've not had an issue since, but you continued to smoke cigarettes?
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
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ChrisCQ | | | | Joined: Apr 2013 Posts: 10 Likes: 4 Member | OP Member Joined: Apr 2013 Posts: 10 Likes: 4 | Now some words on the original problem, which is the pain/pressure -feeling under my tongue that developed right after the otherwise successful tongue cancer operation 8 years ago. I think CherylD is right in that there has been an adhesion that developed after the operation. The hypothesis goes that this adhesion scar tissue is anchored in the floor of the mouth which creates pressure therein.
In the recent operation 1,5 months ago the surgeon enlenghtened (can one say so in English?) the adhesion by 2cm. At the moment I unfortunately have the feeling that it was not enough. I still feel the pressure. I can't say whether there is less pressure or not. Should the V-Y-plasty have been more radical?
How much more length is is possible to create?
I think I have the tendency to unconsciously lift my tongue upwards inside the mouth. Maybe this is due to a nasal congestion problem, so as to get more air - I've read that congestion might lead to tongue thrusting. I have also noticed that I tend to push my tongue forwards when I'm exercising or winded. Or maybe holding my tongue up is just habitual. In any case holding it up tightens the adhesion scar tissue, which results in pain.
So if I'm correct here the result could be that a short enlengthening of the adhesion is not enough. In this case, more could be needed.
Mariaxx
SCC 2005 Oral tongue T1N0M0 No rad, no chemo No recurrences
| | | | Joined: Apr 2013 Posts: 10 Likes: 4 Member | OP Member Joined: Apr 2013 Posts: 10 Likes: 4 | Would rather like input to my adhesion problem thank you.
An other thing that supports the pressure on floor of mouth -hypothesis perhaps is that Lyrica (pregabalin) or tramadol which work for many nerve damage problems do not do much for this pain, nor do conventional pain meds. No pain meds work for pain that results just from genuine stretching of tissue, or what do you think?
Sunny regards, Mariaxx
Last edited by Mariaxx; 07-07-2013 05:35 AM. Reason: spelling mistake
SCC 2005 Oral tongue T1N0M0 No rad, no chemo No recurrences
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Pain medication only solves the symptom - pain - it doesn't deal with the problem. Perhaps you need to have more of the adhesion removed - and you definitely need to STOP SMOKING!! Hugs!! you also need to be closely monitored - this cancer is microscopic - with no other treatment any possible residual cancer will continue to grow and spread - and it doesn't announce itself with a marching band - it sneaks in - and by the time you catch it - it can be an advanced stage. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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ChrisCQ | | |
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