| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im sorry but there are so many studies being conducted out there that it can be hard to keep track of them. You wont find a list of studies here. Its just not something I am able to research and continually update to keep it current. Its a monumental task that would require more time than I could ever devote to it. Im speaking both for myself and the other admin, none of us who do our admin duties as volunteers simply have enough time to take something of this magnitude on.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | This trial was not conducted on humans, it is years away from that. As it turns out it wasn't even a blind trial in animals, but a very preliminary look at this in the lab. If this turns out to be something useful down the road is a long way from anyone knowing. Funding in this economy for a long shot like this will be hard to get to move it forward. Human clinical trials may or may not ever get funded. Application from those trials to a usable treatment or pharma application all the was through the FDA�. decades perhaps.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Apr 2013 Posts: 5 Member | | OP Member
Joined: Apr 2013 Posts: 5 | Had my first chemo (cetuximab) on Tuesday. became violently ill Tuesday night: vomiting, chills, 102 fever. Was so tired on Wednesday I could barely make it through the fitting for my radiation "mask." Slept and did not eat much on Thursday. Thursday evening I perked up and went for a 1.2 mile walk at 9PM. Slept well Thursday night and went for a 2 mile walk this morning (Friday) at 6:45AM. I was supposed to begin my radiation on Wednesday, but Stanford just called to push it up to Monday, followed by second round of chemo on Tuesday. My appetite has returned, and I intend to get some exercise this weekend. I hope I am ready. Ever since chemo my Parkinson's symptoms have worsened, but I am still functioning reasonably well. So far no regrets, but I am only at the beginning.
Michael
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Usually the first day with Erbitux is a boost dose, around 450mg, and thereafter around 250mg a week. Hopefully it gets better.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Parkie, I have Parkinsons and went thru induction chemo and radiation and am doing well, I was treated at a CCC and recieved the best Tx. I am some what younger then you but you can make it thru this. You can PM me if you want, I might not get back to you for a couple of days due to work etc. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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