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littlebird #164310 04-24-2013 07:22 PM
Joined: Apr 2013
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Joined: Apr 2013
Posts: 9
The responses here echo my experience. It was tight at first but loosened up over time as I lost weight. They also made some cuts that made it more comfortable while still keeping me immobile.

I also was given Ativan even though I never really felt that anxious in the mask. The only caution I'd contribute is that there can be withdrawal issues with Ativan if you take it for a few months and then abruptly stop. I'm dealing with that right now and it's taking a gradual reduction in dosage to get me off without the side effects I felt when I went cold turkey right after treatment.


11/2012 - Symtoms: earache
12/21/2012 - Diagnosed SCC, right tonsil
1/21/2013 - First Treatments, weekly Erbitux, Cisplatin, daily Ethyol, 7.5 weeks daily radiation
04/01/2013 - Last day of radiation!
littlebird #164363 04-26-2013 07:50 PM
Joined: Sep 2006
Posts: 1,357
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"OCF Canuck"
Patient Advocate (1000+ posts)
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"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
My mask got tighter as I gained weight during the 7 weeks of treatment. Lets just say I have "fluffed up" since my surgeries!! I just sucked it up and got through it. I was not usually snapped into place for more than 15-20 minutes at a time. i was able to put my mind elsewhere and get through it. It definitely helped to have music going to take my mind off of where I was. At the end of treatment I would have impressions of the netting of the mask. That always made me chuckle and certainly caused a few stares as I would leave treatment.

You will get through this. Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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