Thanks for the kind words Cheryl, and thanks for the reminder on filing the tooth...need to make that appointment, will do it now....:)

Thanks for posting the results of your husbands check up. His docs sound like they are right on top of everything. Congrats to you both on the good check up. So glad the spot was just a spot and nothing serious!

Your Story re another sore that does not heal bothers me. If you do not see an improvement in a couple of weeks ask for an excisional biopsy of the sore. Tell them that you know how thorough they like to be and how they would want to rule out anything untoward. By the way, excisional biopsy is an important point. Punch biopsies and fna's don't pick up this kind of sore. Be proactive - be insistent and tell them you know how they want to be thorough. Good luck.

Donna

Hi Ana,
Eric had Sarcoidosis many years ago and takes Prednisone 3x/wk. He is also having issues of lingering bookend sores on either side of his tongue near the back teeth. There is some improvement but they are painful. His team of doctors reviewed his medical history and discussed his issues and feel the Prednisone may be the cause of such slow healing. I don't know if this applies to your husband but maybe something to discuss with his doctors. Good luck!

Thanks again folks. As of now, V's Sarcoidosis is asymptomatic, so he doesn't take any meds. The score continues to bother him. During his last visit, the ENT has him trying something called "Vanderbilt Solution", 4 x day rinse. He had another follow-up CT today, so he'll be back at U of C in a week to get results and for a general check up, will continue to talk to them about this persistent sore.

Hopefully he gets a clean bill of health!

Ulcers from mucositus, following treatment, can last 2-3 months post treatment, and in some, fail to heal in an extended time. For not healing ulcers, Pentoxifylline, is sometimes used. I hope this helps.

Thanks Paul, I'll add that to the list to talk to doc about. V is 7 months out.

On a side note, in an effort to help the saliva along, he had his first acupuncture today, used a place recommended by his onc. I know it's a small gun and only half of folks find it useful, but it it works, will be worth it. He also started speech therapy last week, having some stiffness issues with both the BOT and the valve that closes the air pipe when he eats. Radiation, the gift that keeps giving. That said, he knows darn good and well how lucky he is, how well he's come through this!