| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | A biopsy usually will take about a week to get the results. Usually doctors will give the results in person rather than over the phone.
Can you call and try to move up your appointment? Ask about any cancellations for the day. If you can move it up that would help to calm your nerves. I know waiting is hard but its only a couple more days.
Im hoping for good results. Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2013 Posts: 10 Member | OP Member Joined: Jan 2013 Posts: 10 | Returned from oral surgeon moments ago. Results of biopsy for the spot that was removed from the underside of my tongue are "mild epithelial dysplasia". It went on to say that margins are clear. Instructions are to do a self exam weekly, continue regular dental visits, and have a 3 month return visit. If there is any change, call immediately for an appointment. I'm very relieved. Thanks to everyone who provided information and support. This is a fantastic site with such compassionate people. I was ignorant about OC and have learned a great deal in a short period of time.
White sore underneath tongue, mild epithelial dysplasia, 2-13 Hyperparakeratosis 5-16
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Excellent!!! So glad you do not have oral cancer!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Ohhhh - I'm SO happy for your great news!! Enjoy and celebrate!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's awesome!!! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 |
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | W-O-N-D-E-R-F-U-L! This is the kind of message we all love to read on the Forum. Congratulations.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Fantastic news that the biopsy came back negative for cancer. I know how relieved you must be Your biopsy result is similar to mine �Epithelial Dysplasia�. Make sure you keep your appointments and regular dental visits. I have one next week with my ENT, Head & Neck Surgeon and this is after 6 years as it still needs to be watched. I am thinking another biopsy is on my cards which does not thrill me but I will do it if it is recommended. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jan 2013 Posts: 10 Member | OP Member Joined: Jan 2013 Posts: 10 | Thank you all for the good wishes. This site and the kind and helpful people here have gotten me through this rough patch.
Gabe, I certainly will keep up with the self exams, dental visits, and appointments. Your dysplasia has the word hyperkeratosis in front of it. What does that mean?
White sore underneath tongue, mild epithelial dysplasia, 2-13 Hyperparakeratosis 5-16
| | | | Joined: Jan 2013 Posts: 10 Member | OP Member Joined: Jan 2013 Posts: 10 | I wanted to update my situation in hopes that it may be helpful to someone who develops a spot under their tongue. Have been doing weekly visual inspections for over a year and all is well. Dental visits have been normal. I returned to the oral surgeon in June 2013 for a follow up and then in February 2014. Doctor released me and said he saw no reason to return. He encouraged me to continue to visit my dentist twice a year and do a self exam every week for the rest of my life. If I notice any changes, I should call him ASAP. It still puzzles me that I developed this spot since I had no risk factors.I feel very blessed and am grateful for the support and information I received from the wonderful people on this site. Thank you!!
Last edited by healthyandfun; 03-12-2014 11:10 AM.
White sore underneath tongue, mild epithelial dysplasia, 2-13 Hyperparakeratosis 5-16
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