#16102 08-02-2004 02:20 PM | Joined: Mar 2003 Posts: 11 Member | OP  Member
Joined: Mar 2003 Posts: 11 | hi all, i visited this site about a year a go i had SCC stage 3 at the base of my tounge. had surgery and lymph nodes removed and they were clean, so were cat scans and pet scans. so didn't do any chemo or radiation. LUCKY. at a follow up visit recently they found a lump at the back of my soft pallate. BUMMER. my surgeon said it's a real tough spot to take out the tumor and recommended radiation. it's funny but i do work for a pretty renowned oncologist on long island but i didn't think that chemo was used for something in the mouth only. i'll be calling him tomorrow. i'm a pretty dang positive guy. guess i'm going to have to kick it up a notch. anyhoo, say hi to me if you have a minute.
dan | | |
#16103 08-02-2004 02:27 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Hello Dan Q Welcome back, sorry that you have to come back tho..Yes you were lucky, so was I the first time around.,,I pray the chemo works, I am with you on that tho-didn't think they used chemo for cancer that high up,, but then I also am not a doctor, LOL, tho I fill I could be one at times, lol. I wish you the best whatever they decide for you. I wish there would be a miracle for all of us...We sure would never take anything for granted again that is for sure..Keep us informed on how you are, okay...Always Vicki Lynn | | |
#16104 08-02-2004 02:58 PM | Joined: Apr 2003 Posts: 136 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2003 Posts: 136 | hi dan,
i read that you like to drum. it maybe time to have a long work out... let it rip! you'll feel better.
cu,
larryb
'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.
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#16105 08-02-2004 06:11 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Dan,
Hi and welcome back. I am sorry to hear your news. I am hoping and praying they will find the best treatment possible for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16106 08-03-2004 04:04 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Dan,
Hi Dan, so sorry to hear you are back in the fight again. I will add you to my growing prayer list and let us know what your oncologist says. When I was diagnosed is 2002 they added chemo to mix to help the cells accept the effects of radiation but they knew at the time that mine had spread to the lymph nodes. Will pray they stop the beast this time! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#16107 08-03-2004 05:57 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Welcome Dan-Q, welcome... As someone else who is going through recurrence issues, I'll be pulling and praying for you... Let's kick this thing in the butt for good this time!!
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#16108 08-03-2004 07:41 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Dan
Sorry to hear that you have had to return here under such circumstances, but as you know all are welcome, dig deep and hopefully we can help you ask the right questions about your future treatment..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#16109 08-03-2004 08:29 AM | Joined: Mar 2003 Posts: 11 Member | | OP Member
Joined: Mar 2003 Posts: 11 | hey everybody,
man it feels good to not be alone eh! i know this is cliche but i sure do feel fine physically now. I just squeezed in an appointment with a head and neck radiation therapist at LIJ on long island. i also have a second radiation therapist meeting on friday... i'll go with whom ever i feel most comfortable with and i guess we'll just blast this stuff out of me.
i am a drummer by the way, if anybody is from queens i'm playing a couple of tunes at a pretty big equadorian festival this sunday. come say hi the band will be posted as "grupo fiesta". i'll be the gringo playing the drums.
dan-o-mito | | |
#16110 08-03-2004 09:14 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Dan, I suggest you seriously considering doing radiation with chemo. The chemo boosts the effects of the RAD. Blast it with everything you can this time, so there won't be another! My daughter had RAD without chemo (on the doctor's advice) and she didn't make it. I'm surprised RAD wasn't recommended the first time. It is unusual for stage 3 to be treated with surgery only. Have you sought a second opinion? And are you being treated at a major cancer center? Rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#16111 08-03-2004 11:07 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Dan-Q,
I like your way of thinking. Before you even said you're a positive guy, I thought that to myself. When all my friends and family had those long faces of "my friend/daughter/wife/etc. has cancer", I would smile and make jokes about my situation. Though it was for their benefit to make them more relaxed (which is did), it also REALLY helped keep my spirits up too! When you hear that laughter is the best medicine, believe it.
Keep it up! We're rooting for you!
Sabrina | | |
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