#16085 08-02-2004 07:18 AM | Joined: May 2003 Posts: 8 Member | OP  Member
Joined: May 2003 Posts: 8 | This is my first post. I have visted the site many times over the last year and a half. March of 2003 found lump in neck the day before my yearly physical,Doc sent me to ENT and they did the test and told me that I had SCC stage IV base of tongue. Thirty seven rad. treatments and a right side neck dissection later (on 7/21/2003) I thought I had beat the beast. They said if you go one year your chances get better,but I know you know all the statistics. Well guess what. On
7/28/2004 new lump on same side. Thin Needle biopsie and the news was not what I wanted to hear.I return to the Tumor Board on Wednesday for new course of action. I just wanted to thank everyone who post on this site for lots of good information that I used over the past battle. Now I start a new one and I know with God's grace and the great Doc's at Duke Medical Center I will beat the beast again!! I will not be a stranger to this site any longer. I will keep you posted as too what they tell me.
Bobby J
SSC stage IV Base of tongue
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#16086 08-02-2004 08:00 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Bobby,
Welcome back, though we all wish it were under more positive circumstances. Good luck with your doctors and definitely keep us posted.
Sabrina | | |
#16087 08-02-2004 10:06 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Bobby, Welcome to the site. Glad you were helped during your first episode, sorry to hear that you will have another opportunity to beat the beast. Let us know what's up with you so we can hopefully be specific with future info. What did the new pathology report reveal when the biopsy came back from the needle? Where is the lump, in a lymph node, or somewhere else? Any other related information you have would be helpful.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16088 08-02-2004 10:29 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Bobby,not the way I would like to welcome you, but you are here now, and if you have been regular visitor you know a lot about us, now you have to keep us up to speed with what's happening to you. Please keep us posted as your treatment is decided, we will be here to help you all we can..
sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#16089 08-02-2004 11:40 AM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 | Bobby J, keep that confidence high! We now have your name and prayers can be zeroed in. I reitterate, "Keep us posted."
David
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#16090 08-02-2004 06:14 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bobby,
Welcome back. I am sorry you have had to come back, though. I am hoping and praying God will provide the wisdom and guidance to your medical team to find the best possible treatment for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16091 08-03-2004 03:50 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Bobby-
Sorry you had to hear the news again. We all live under that pressure and only wish and pray the best for you as you start on this next journey. We are with you on this fight!! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#16092 08-03-2004 05:45 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Bobby-
As a fellow North Carolinian (who is actually living in Arizona right now), I say "welcome."
I, too, am going through a second round of treatments for a recurrence... Let's both beat the beast together this time around!!!! Praying for you...
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#16093 08-03-2004 02:46 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Bobby,
Sorry to hear of your reoccurance. Hoping your medical team and your positive attitude can pull you through. You have my best wishes for a full recovery.
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#16094 08-11-2004 07:52 AM | Joined: May 2003 Posts: 8 Member | | OP Member
Joined: May 2003 Posts: 8 | Thanks for all the great post and support! I had a PET scan on Friday and got the results back. NO OTHER HOT SPOTS!! now I can focus on the spot in my neck.I am scheduled for surgery on the 23ard for the removal of the tumor and flap reconstruction.They said the operation could last six to eight hours,but that is OK I will be asleep. They said depending on the path report after surgery as to how long and how much rad./chemo I will have to endure again. I dread that more than the surgery. It really whipped me before. Lost sixty lbs,but whatever it takes to beat the beast I am up for it. I have a great support system. Wife is a nurse,that helps and I work at Duke Med. Center. I have two wonderful daughters that I love and adore to death. One twenty three and one twenty,so like so many others on this board I am not ready to let this thing beat me. Too much golf to play too many miles to put on my Harley,too many years left to spend with my loving wife and kids.Well I will keep you posted.
Bobby
SSC stage IV Base of tongue
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