| | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Hi Mandy,
Welcome to the club. I can't offer anything specific as I still have training wings on too and new to this wonderful group. I can say that there are quality folks here with solid experience and knowledge.
Wish you well and take care,
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jan 2013 Posts: 17 "OCF across the pond" Member | | OP "OCF across the pond" Member
Joined: Jan 2013 Posts: 17 | Spoke to my head and neck nurse today and she was very positive about my treatment so I am a little less scared. I understand that it is not going to be a walk in the park but hopefully in early summer I will be CURED and feeling much better. I do feel very lucky, my work is being very supportive, they are taking my out for a curry before my taste buds go and I am entitled to 28 weeks full pay sick leave and then 26 weeks 1/2 pay. I also have a supportive husband, 3 children and 2 foster children and a group of friends who I know will do their best to make sure that I get through this. I am very impressed with the NHS - I had my biopsy on the 27th December and am due to have my operation on 14th February. Will keep you all informed on my progress and thank you all for the kind words of support. Mandy
SCC type 1 tumor in left cheek aged 45
T2N1M0 - surgery 14/2/13 to remove tumor, skin graft from wrist, neck dissection. No rads/chemo.
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Supportive care is just as important as treatment is. With that, and cooperation from your employer, thee are two less worries for you. God luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Mandy, Look thru the OCF archives and look for a member "Cokey" from England, she lost her husband Rob to this diease and could help you right there in England. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Apr 2003 Posts: 122 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2003 Posts: 122 | Hello, Mandy and welcome! I'm sure you're a bit overwhelmed with all that is going (and about to go) on, but hang in there and post as often as you like about any of your concerns or problems as they present themselves. You'll find much good usable information and many fine folks here and I truly hope all goes well with your surgery and afterwards.
I was diagnosed on Valentines' day years ago and I wish I'd had my first surgery then also, as it could've gotten all of it at one time and I'd've (?) been done with the whole...roller coaster is as good a term as any. As it is, life goes on-am constantly amazed by the strength and fortitude that I never knew were hiding in the gray matter. You'll find yours, too. Really. We're here for you, praying for you, rooting for you, knowing that you'll make it-'coz you're TOUGH! Let us know.
Gordon
SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!
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