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Joined: Oct 2011
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"OCF Canuck"
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[quote=TwinPeaks]Is there a brand of cream lip balm without menthol that you can recommend? I can't think of one....[/quote]
He said Blistek (sp?), but the one I liked was a Blistek in an orange tube with 'natural ingredients'. It did contain menthol so it was poo-pooed by the nurse, but I still liked it - you can't use anything (cream, balm etc.) an hour or 2 prior to radiation.
[quote=Kelly211]You might want to add some game books like crossword or saduko (sp) for those long waits in the rad department and doctors office. [/quote]I was lucky - the whole rad waiting room was filled with large tables, those weird lazy-boy type chairs for people that needed them, and they had jigsaw puzzles on all of the big tables. The volunteer cancer rad/chemo drivers (wonderful men - no women for some odd reason) always complained that there were no new puzzles and they were tired of the old ones. The new set of rad patients picked the same ones over and over again.

Great distraction for me and my husband. Now that's an idea! Donate your old jigsaw puzzles to your local hospital.

Thanks for that idea Kelly...love you all


Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.
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"OCF Canuck"
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Added another one:
14. Many, many bottles of Club Soda. Seems to be more of a Canadian Rad doctor recommendation thing vs. the baking soda/salt/warm water recipe that other countries use. I just found it way more convenient, and so did my husband. Still addicted.


Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.
Joined: Nov 2012
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Posts: 17
Books on CD might be something he will like. Reading and watching tv made Eric's nausea worse so he enjoyed the books....and music too.


Kat fiance/CG to:
Eric: age 57
DX 10/19/12, HPV16+ SCC stage IV lft tonsil, BOT
nonsmoker,casual drinker
TX 11/5/12 Cistplastin wkly x 7, IMRT x 35
PEG placed 11/9/12
ALL CLEAR PET SCAN - 4/16/13
PEG removed - 4/29/2013
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Posts: 7
Thanks for all the great suggestions everyone!!!!!

Joined: Aug 2011
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Aquaphor has a lip balm called "Lip Repair and Protect" with SPF 30. It's the best stuff I've ever used. Everyone has his/her own opinion. Hey, sometimes I've even massaged extra virgin olive oil into my lips.

You have some great suggestions here!

Best wishes and keep coming back smile.

Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #160337 01-15-2013 10:03 PM
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Thanks for the suggestion Kerri and I'm sorry you are having to deal with this. I hope your baby is OK!

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