| Joined: Sep 2012 Posts: 5 Member | OP Member Joined: Sep 2012 Posts: 5 | Thanks to everyone for your tips, advice and support! My dad recovered from his surgery like a champ with only minor scarring on his neck and a slight speech impairment.
All along the doctors were saying that he wasn't going to need radiation, but alas, there was a possibility that the cancer could have moved into a nerve and so he is now 4+ weeks into radiation therapy. He's pretty much lost his ability to taste anything but fats, his throat is sore all the time, his tongue is swollen, he just got put on antibiotics for thrush, he's losing weight, he has no appetite...the usual. However he said that the hardest part of all of this is the constant dry-mouth. His salivary glands have pretty much stopped working, and his mouth is always dry. He wakes up 3-4 times per night to drink water because his mouth is so dry. Apparently cough drops and lozenges don't help either. Any ideas or suggestions would be greatly appreciated!
Thanks,
Magen | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Try Biotene mouth wash. Its made for low saliva patients. I kept some on my nightstand when it was bad for me. I would swish some before going to bed and then have it available for later if need be. It helped some but nothing got rid of the dry mouth like time. I can sleep through the night now without any problems and a good deal of my saliva has returned but it took months.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2012 Posts: 214 Likes: 1 | Try a nose spray before going to bed. The key to sleeping with dry mouth is to sleep with your mouth closed. A stuff nose was my biggest problem.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Also a vaporizor nearby will help too. Bet of luck - there's only a few more weeks to go.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Like Kelly mentioned, I used biotene products too...Biotene no alcohol mouth wash for dry mouth, dry mouth tooth paste, dry mouth gel at night, and dry mouth gum. It was just easier to get in most stores, but there are others out there. Drinking water all the time is key too... before going to bed, before meals, even just rinsing, using a humidifier at night like Cheyrl said. Some use saliva meds, like salagen. Smelling lemons, putting lemon in drinking water helps produce saliva, chewing gum, citric hard candy,,preferably sugar free, but I stopped all the sugar substitutes. Hockeydad mentioned sleeping with the mouth closed. The salivary glands shut down or reduce so much even in normal people, and reason why people wake up with a funny taste, and morning breath. I even heard of taping to the mouth closed at night to help keep the mouth closed to help prevent dry mouth, which sounds funny, and some use the cpac..for snoring anyway, but founds it's also good for dry mouth. Alcohol, even with mouthwash, dries the mouth, so does caffeine, peroxide. I hope this helps. As always, check with your doctors, especially with the tape lol. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Yes to the biotene as well. I used the toothpaste, mouthwash and gel, and found the gel the most helpful.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
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