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| | Joined: Apr 2013 Posts: 9 Member |  Member
Joined: Apr 2013 Posts: 9 | Adding to an old thread rather than starting a new one...
My dry mouth wasn't really that bad 6 weeks post treatment, but my doc suggested it to assist the recovery. I was warned about side effects and the time it takes to work (2-3 wks, sometimes longer). I'm only 12 days in but for me it hasn't been worth it. The thick saliva I now produce has impacted what I had regained of my taste, get the sweats regularly, and I feel flush and hot (which makes my wife do the happy dance: "Now you know what it feels like!!" LOL
I'm going to stick it out for the suggested acclimation time but not any longer, the side effects aren't worth it IMO. YMMV
Last edited by DanfordE; 05-28-2013 06:46 PM.
11/2012 - Symtoms: earache
12/21/2012 - Diagnosed SCC, right tonsil
1/21/2013 - First Treatments, weekly Erbitux, Cisplatin, daily Ethyol, 7.5 weeks daily radiation
04/01/2013 - Last day of radiation!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Please let us know how you make out in a couple more weeks on the medication.
I too gave the pilocarpine a brief try. I probably only lasted 3 weeks before I stopped using it. I couldnt stand how it made me sweat. Maybe if it hadnt been summer I would have had better results.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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