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Joined: Jul 2012
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Patient Advocate (old timer, 2000 posts)
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A nutritional assessment is in "Complications in Head and Neck Surgery", pages 42, basically based on Harris-Benedict formula for basal energy expenditure (BEE). Trying to find the hydration formula aspect, if it's in here, but it's 794 pages.

You can also check for dehydration by pulling the skin on the back of your hand and see how quickly it retracts. Some people may just have loose skin, so its not failsafe, as well as taking meds, vitamins that darken the urine, vitamin C, but both can give a quick assessment, in addition to other findings.

Even knowing this, I was dehydrated during treatment, needed several IV infusions. I wasn't talking in half I should have, even with the feeding tube. Guess there is a difference in reading and practicing it.

There are many hydrstion calculators on-line...search Daily Water Intake, that are based on weight or caloric intake. I just did one, and came out to 90 ounces. Of course, there are other factors..climate, activity....


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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One point to make about urine color (and believe me I drink a LOT daily) is that vitamins and supplements and medication you take can affect it. I take circumen and it turns my urine a lovely shade of deep gold! But yes under normal circumstances the specific gravity of your urine is often determined by color. Sorry for over sharing.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Mar 2008
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Patient Advocate (old timer, 2000 posts)
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Cheryl

Ewww!. Grammatically, when you used the parenthetical, your post says you drink a lot of urine on a daily basis.
As one newbie posted : Personally I don't believe it.

Sorry but I just had to have some fun with the theme of misreading posts to come to nonsensical conclusions. grin

Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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I noticed that too, Charm! We can always count on you to remove any confusion from anything posted here and to give us accurate information. . . . . otherwise, we might all be drinking it too. sick Thanks for always watching out for us. You are one cool Dude. cool


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

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Posts: 939
Now we are really gonna lose some people...lol. I remember that survivor guy that urinated on his head scarf to keep cool in the desert. Guess when you are hot, you will do anything to cool off.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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I have to agree with Deb, and add that sometimes, you just gotta do what you gotta do, and whatever works, as long as it's ok with your doctor.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
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Actually, and maybe unfortionetly, drinking it is a very alternative cancer treatment that some do.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
I use Glucerna 1.5 cal for diabetics...8oz, 356 calories, 19.6 grams protein, 31.5 carbs. I revived 8 cases from my treatment center, but I think was done through my insurance...Medicare, but thats ok. Some OTC Glucerna, boost and such are becoming to have less calories... less than 100, and deigned or advertised to reduce weight. Even the bottleis are shaped like a figure with a small waist. I have a jack LaLanne juicer, a vitamix, but it's easier for me to pop the lid too. Good luck with the biopsy.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
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Giggle... Let me rephrase that - I drink a lot of fluid daily... NOT urine... Promise. smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2012
Posts: 31
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: May 2012
Posts: 31
You wicket, wicket people:-)

Well, I've been back home after my second round of chemo (the 5 FU reduced from 5 to 3 days)for about 5 days now. Starting to feel a little better. Tumor pain gone. Still dry mouth and down to 160 lbs. Did 3 days in a row of IVs after they released me.

Looks like I'm going to get a total of 4 rounds. So, the third round will likely be right after Christmas.

They likely won't do a scan until possibly after round 4 around February. Notice all the "likely"s!

I'm torn between wanting to ignore this whole thing (believing that chemo recovery is the end-all) and attempting to prepare myself for the unknown likely-hoods of Brachytheropy and/or surgery.

Radiation Doctor spoke with Brachytheropy Doctor who said he would look at my records 3 days ago.
Was supposed to hear back and getting anxious.
I really want to ignore all this and go sailing and drive my loudly modified RX-7 convertable. Mixed emotions of wanting to enjoy eating and preparing myself for not.

My two sons and my daughter will arrive on the 18th.



Squamous Cell Carcinoma base of tongue
Erbitux 12 wks
IMRT Radiation ended 8/7/12
MRI Cancer live 10/3/12
3 rounds Chemo (Cisplatin, 5FU, ??)
Brachytherapy 7days ended 1/28/13
PET SCAN 4/19/13
70 yr old 8/20/12
Walt
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