| | Joined: Nov 2012 Posts: 7 Member | OP  Member
Joined: Nov 2012 Posts: 7 | I now have the Port and PEG in place. Ouchie. Both my Medical Oncologist and Radiation Oncologist said I would need the PEG. Luckily I don't have an latex allergy. The doctors are amazed I can currently swallow anything really solid like meat. At this point it just sometimes sticks. So, probably between the pain and swelling I will need the PEG at some point in time. Need to keep the nutrients coming in. Radiation starts on Monday and Chemo starts on Tuesday. I am so glad I found this forum. It has been a source of great information and support. 
Age 52 at Dx, SCC,Stage IV BOT and PET shows only 1 node, T4N1M0, smoker (quit Nov 16 2012, non drinker, scheduled for Cisplatin x 7 with concurrent IMRT x 35 plus additional 3 months of Cisplatin.
Dec 2013 - NED
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Emile, glad you have all in place, and goodluck with treatments next week. I saw in your profile they are doing 3 additional months of Cisplatin, adjuntive therapy, after Chemoradiation? I have not seen that, and curious why, if you know? I know radiation continues to work for another 6 weeks after completion, and wonder if the chemo is being used as radiosensitizer for this time?
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Nov 2012 Posts: 7 Member | | OP Member
Joined: Nov 2012 Posts: 7 | I'm not sure why they are doing the additional 3 months. Perhaps to knock out any stragglers. Thinking it had spread to other areas of my body. Originally they thought I had multiple nodes involved in my neck. Almost all from my clavicle up. The PET just showed 1 with no spread to the rest of my body. My other nodes were doing what they were supposed to be doing by fighting the cancer off, which might explain their swelling. That was his original prescription. Guess I'll see what happens as time goes along.
Age 52 at Dx, SCC,Stage IV BOT and PET shows only 1 node, T4N1M0, smoker (quit Nov 16 2012, non drinker, scheduled for Cisplatin x 7 with concurrent IMRT x 35 plus additional 3 months of Cisplatin.
Dec 2013 - NED
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Thanks, and good luck again.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Good luck - so glad all those nodes weren't involved. take care. Are you at a ccc?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2012 Posts: 7 Member | | Member
Joined: Dec 2012 Posts: 7 | Bette,
My husband is scheduled for partial glossectomy on the 17th of December with removal of all lymph nodes in neck. Would love to keep in touch with you to see how things go.
1/16/12 - diagnosed with Stage IV BOT cancer with 2 nodes involved. HPV+
2/12 - 4/12 - 40 rads and 8 chemo
7/12 - PET clean
10/12 - cancer back at base of tongue
12/17/12 - partial glossectomy, neck dissection
| | | | | Joined: Dec 2012 Posts: 8 Member | | Member
Joined: Dec 2012 Posts: 8 | Hi Emilie
I'm new as well, 40 y/o and diagnosed with Stage 4 Oral Cancer. My Cancer started out as a sore on my tongue. Developed into a bigger spot and once biopsied - (+) Cancer. i had my surgery, which was interesting, I thought it would be a few small incisions but it ended up with 2 large incisions and drain. After surgery it was decided that because 3/20 nodes were positive = Chemo/Radiation. Just completed my first week of 7, not bad. Just developed a lump near my jaw which I understand could be drainage from lack of lymph nodes. Otherwise, you stay strong and keep your head up. My Mom was going through Cancer when I was 21, your son will be there. Sons LOVE THEIR MOM. I am sure he loves you, especially through all your sacrifice.
________________________
Ron
_________________________________________
T2 - Oral Cancer
Stage IV
Neck Resection -October 26, 2012
3/20 Lymph Nodes (+)
Cisplatin/6600 Radiation - Began December 3, 2012 - 7 weeks
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