| | Joined: Dec 2012 Posts: 5 Member |  Member
Joined: Dec 2012 Posts: 5 | I would like more information on why a tube is inserted {PEG}
When I had my neck surgery to remove tumor SCC from my parotid gland and the 6 weeks of radiation, I did not have any tube. I only ate soft items with lots of water { soups, maltomeal, shakes and nothing solid that I had to chew up. I used a mixture of "magic mouth wash" that I took a little before meal time and it numbed the esophagus into taking the food down. After one week post radiation, I ate my first hamburger in months. Little hard but I loved it.
pbvsrv
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | A feeding tube is up to the patient and their doctor to decide about. Not all doctors or facilities will have their patients get a feeding tube while others insist upon it. From my understanding if a patient is getting chemo with rads most facilities will encourage the patient to get the tube. For many members, a feeding tube is a very necessary tool to get them thru treatments.
For more info try doing a search both here and on the main OCF pages. Im sure you will come up with lots of interesting reading material.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2012 Posts: 5 Member | | Member
Joined: Dec 2012 Posts: 5 | Thank you for the information. Just wondered about it as I was never offered one. LOt of trouble with sore esophagus for the 6 weeks.
pbvsrv
| | | | | Joined: Dec 2012 Posts: 3 Member | | Member
Joined: Dec 2012 Posts: 3 | Hi group!
I've been living on a PEG for a while now. I'm trying a blog in hopes of giving others hope. I'm on my second PEG - replacing the first one (wore out the end) took about 10 seconds!
As I can tell from all of your stories, there are a lot more people using a PEG that I would have ever imagined!
Regards,
Jack
Jack Teeter
Long time survivor (since 1994 - I AM blessed!) KEEP THE FAITH! Recently lost ability to swallow, started blog
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Jack. Welcome to our group - those who rely long term on the PEG .
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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