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#15781 06-30-2004 05:17 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Leena, Congratulations on your achievement! Pretty soon your taste will improve and everything will go from nothing to cardboard. I learned to make cranes at 4 years old and all through school I made little blow up balls to play with in all sizes. Halloween 2000 my mother made piles of all kinds of things to give to the children with candy. They were all ooing and ahhing all the way back to their parents. When I was 5 I only spoke Japanese and could not go to kindergarten when we moved back to the US in 1961. My mother used to go to grade schools and teach oragami. She put a (dog) harness on me and tied me to the doorknob while she taught. I still jump up and bark for treats.  You'll be eating ham way before Christmas! Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#15782 06-30-2004 11:13 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Leena,
Congrats on eating "real" food! I know just how big a victory that is. Although I've been out of treatment (total glossectomy, chemo and 37 rad treatments) for 7 months, I just began eating solid food. I'm able to get down one small meal a day supplemented with liquid nutrition. It's not an easy task - takes a lot of determination, patience and practice but I'm doing it! So I believe you'll be eating that Christmas ham and mashed potatoes before the Christmas season is upon us! Keep up the good work.
Hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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