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Bette #158013 11-24-2012 08:02 AM
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"OCF Canuck"
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Bette - YOGA... Find a studio go for an hour and a half. Make that your time. It will help still your mind, and also help your own health. I too find activity helps when I am stressed. I want to do something about it. But you have to find that place where you can say at this point I've done what I can. I totally hear you though. This is a difficult journey. particularly because you've walked this path too many times before. Hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Bette #158029 11-24-2012 11:40 AM
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Bette Offline OP
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Hi everyone,

Just wanted to let everyone know that the trip to see my daughters and grandchildren did a world of good. It made me remember that there is life going on outside the world of cancer. Reggie and I had a wonderful 3 days with all and were glad to get back home for some peace and quiet. The grandkids were full of energy and wore us both out. We slept in til 8:00 this morning. It gave me a new perspective and hopefully I can get packed and ready to go by next weekend. We now have to arrive in the city on Monday as Reg has sopme last minute pre-operative tests to take. Thank you all listening and posting to my silly out of control self.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Bette #158032 11-24-2012 01:04 PM
Joined: Apr 2012
Posts: 111
"OCF across the pond"
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That's great. I'm really glad it has revived your spirits. Sally


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
Bette #158036 11-24-2012 01:29 PM
Joined: Nov 2006
Posts: 2,671
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It's so good to hear about how well the trip went and that you got some restful sleep which does a world of good, too! Keep in touch to let us know how you both are doing.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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"OCF Kiwi Down Under"
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Bette. I certainly don't think any of your posts were silly or out of control. So pleased you both enjoyed some quality family time. Will be thinking of you both. Keep us posted.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Bette #158085 11-25-2012 03:14 PM
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I really feel for you, this must be so hard. I'm not an old hand at this - my husband has not yet finished his first treatment, but my friends have reminded me to take just today, and not take in yesterday or tomorrow. I have to remind myself often, but this really helped. I have cried, and talked to people and that makes it a bit better also.


Husband, age 69, Diagnosis 9/27/12, SCC BOT, Dx 2B, PEG tube 11/15/12, TX rad, IMRT
Bette #158106 11-25-2012 09:14 PM
Joined: Oct 2012
Posts: 118
Bette Offline OP
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Xangria,

Thanks for the thoughtfulness. I realized today that there is only one week until we leave for the surgery. So now my mind is occupied with what must be packed and errands and bills that need to be taken of before we leave a week from tomorrow. My oldest daughter came over and we discussed the plan for the day of surgery. All of a sudden I'm feeling very focused and realize there is not much time to do what needs to be done. So the lists that my husband was fretting over last week have now come in handy and I pulled the suitcase out this afternoon. Bought Christmas cards today that I will send from the hospital. I'm finally getting a grip and moving along. I think it has to do with now we are on schedule and that helps.

Thank you all. Sorry for being such a wimp for the last couple of weeks. I'm good. :-)


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Bette #158107 11-25-2012 09:16 PM
Joined: Oct 2012
Posts: 118
Bette Offline OP
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Posts: 118
I think I will start a blog and on the blog thread when Reg goes in to hospital and I will post from there. If one of the Administrators could combine all my threads that would be appreciated.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Bette #158120 11-26-2012 08:19 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Posts: 2,671
Glad you're good, Bette. You sure do sound organized and you have a lot to keep you busy on surgery day. Wow! you are even doing Christmas cards! Looking forward to the blog.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Bette #158129 11-26-2012 09:33 AM
Joined: Oct 2012
Posts: 118
Bette Offline OP
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Thanks Anne-Marie and everyone who has posted and kept me off the ledge...
IT will be a busty week and I'm so glad because I just need to keep my mind off the whole dang thing, Ya know? :-)


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
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