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Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
No there will no radiation.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
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frown hopefully they'll get it all!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
OP Offline
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Joined: Oct 2012
Posts: 118
Heard from San Francisco on Friday. Reggie will have surgery on Dec. 5th. We plan on going to the city on the 4th so I can get settled in to my home away from home. But I'm only 5 blocks from the hospital. Dr. Wang told us it is stage III or IV. Which will be determined during pathology of tumor. He's confident no nodes involved. We both agree that we just want to get on the other side of this surgery so that recovery can begin. We want to go to New Orleans in our RV for Mardi Gras. I plan on posting the whole time Reg is in the hos[pital. I hope you all will be there for me.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Sep 2012
Posts: 381
"OCF Canuck"
Platinum Member (300+ posts)
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"OCF Canuck"
Platinum Member (300+ posts)

Joined: Sep 2012
Posts: 381
Bette,

We will all be here, rooting for you and Reggie!


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Hi Bette, now you have a date and a surgical plan. Great. I found that these two things helped me focus and I could move forward. I still had wildly swinging emotions, but having that all important plan in place eased a lot of my fears of the unknown and the thoughts of impending doom and gloom that nearly drowned me.
For me, it was terribly important to be there at the hospital most of every day . Being close( I was a 5 minute walk ) to the hospital just makes it all so much easier. I went back to my room at the lodge for lunch and a rest and then returned to the hospital after an hour or two .
Do post here regularly, I will be keen to read how you both get on and to support you if you need.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
So glad they are moving relatively quickly. Best of luck - we will be here! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Thank you all very much. I will be a pest while he's in the hospital, don't worry....


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Bette - Hope everything goes really well with Reggie's surgery on the 5th. Come here often - there is always someone here to listen and offer support. Thinking about you and Reggie and hoping for the very best outcome!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Oct 2012
Posts: 118
Bette Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Oct 2012
Posts: 118
Hi everyone,

I've been looking around the OCF website. I've noticed a list of books for sale...Can anyone recommend which ones to buy?? I will need some reading material for the day of the 12 - 14 hour surgery. I've 50 Shades of Grey too many times already...:-)


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Anything that is light reading might be best. Everyone is different of course, but on my son's surgery day, I couldn't concentrate very well and what helped me tremendously was having my daughter and a friend of mine come with me. They really helped to keep me thinking positively. In the surgery waiting room, there was a monitor that updated everyone on how the surgery was going for the different patients. My daughter and friend stayed the whole day, made me go to lunch with them at the hospital cafeteria.- I couldn't eat except for two bites of a turkey sandwich which I took just to please them! But it kept me busy. After the surgery, there was a special smaller room connected to the surgery waiting room, and the surgeon took us there to update us on how the surgery went. The two special people with me were really helpful in asking the right questions and helping me to remember later what the doctor said. Bette - it would be great if you could have someone with you, but if you have a laptop or smart phone with you, then you can keep in touch with us here, as well. I'll be thinking of you and your husband on surgery day and hoping for everything to go the very best way possible!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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