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#156605 10-22-2012 12:57 PM
Joined: Sep 2012
Posts: 58
Max1987 Offline OP
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Hello everyone,

I had my neck dissection surgery one week ago. They have removed the clips today.

Unfortunately, all my left side around the neck is numb. They say it can take even 6 months for the numbness to go away.

I would be keen to hear other people's experiences. How long did it take to recover?


25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
Max1987 #156623 10-22-2012 09:19 PM
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Hi Max,

Unfortunately, I have no answer for your question. How are you doing otherwise? Six months sounds like a long time but believe me, the time does fly past quickly. My neck dissection is coming up on Wednesday. They're doing it separate from my partial glossectomy. I hope you're recovering nicely aside from the numbness!

Karen


mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads
Max1987 #156626 10-22-2012 09:30 PM
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Posts: 112
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Hi Mausmish, I had my selective neck dissection separated too.

Max, well, I had this surgery too and my smile were pretty strange for about 40 days after the surgery. Then It came completely back to normal.

I must confessed that I almost freak out when I looked in the mirror and saw my mouth dumb, I was MAD because the doctor didn�t told me it was going to happen. And when I asked he told me there�s a little risk to not recoved. However, It was 100% recovered.
Then I bet you�ll feel the same.

I lost the "sensitivity" in a small part under my mandible. But it does not bothers me at all. And the doc saids it keep improving until ONE YEAR after the surgery.

Yesterday I complete 10 months post surgery and everything is fine.

Keep us posted!
love


December, 2011 - T1N0M0 SSC Oral Tongue sugery (Dec 07, 2011). Partial glossectomy, primary closure. Selective Neck dissection, all 57 nodes free. 29 at diagnosis, no risk factors at all. No smoking, drinking and HPV negative. Can you explain? I can't.
Max1987 #156627 10-22-2012 10:04 PM
Joined: Sep 2012
Posts: 58
Max1987 Offline OP
"OCF across the pond"
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Karen, thanks I'm recovering nicely.. the hardest times are behind.. i hope your neck dissection will go well on wednesday!

Brazilian girl, I see.. this is what they told me.. it's a long process to recover but eventually it will come back.. they told me there were two (or maybe a few) nerves that could be affected after this operation. One is that goes towards the lips and is responsible for the smile - it sounds like you had a problem with this nerve. And another one is neck + cheek... it's not visible for other people that's it's numb but feels very ackward!


25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
Max1987 #156636 10-23-2012 06:52 AM
Joined: Sep 2012
Posts: 381
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Hey max,

Currently both my ears, much of the back of my head, a my jaw down to mid chest are numb. My doc says likely the lobes of my ears won't regain feeling and there will be the strip across my throat that will also remain numb.

My left thumb is also numb from where they took the flap to reconstruct the tongue, and that one is unknown for the moment. The surgeon has said we will know more when I meet with him in a couple of weeks.



Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Max1987 #156656 10-23-2012 09:51 PM
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Posts: 42
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Hi Max, am just 10 months out from the neck dissection, and about 95% back to normal. Took a couple months before I could shave without a mirror, then gradual steady healing of the skin nerves. Maybe 4 months before the scar line was mostly smooth. Now it looks like an aging line. Time went fast... Fitness seems to really help.


Nov2011Tonsil Cancer Stage3 T1N1 HPV+, Non-smoker, slight drinker
Dec2011 Radical Tonsilectomy (TORS),
Jan2012 Neck Disection areas 2,3,4
Feb2012 Opinions from 5 RO's decision for No Rads/No Chemo
Jan2013 all clear at 1 year , continue regular check-ups
Jan2014 all clear at 2 years, less frequent check-ups
Jan2015 all clear at 3 years, MRI, chest x-ray, blood work all good
Max1987 #156659 10-23-2012 11:36 PM
Joined: Oct 2006
Posts: 383
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Max,
My first surgeon explained to me there is a small facial nerve that could be caught and would cause the right side of my mouth to drop. He wanted to warn me because he was pretty certain it would get cut or nicked during surgery. He summed it up by telling me to take a look at Sylvester Stallone as he had it severed with forceps at birth. Well it got caught but I don't believe it causes the numbness I get.
I am almost six years out from treatment and I seem to get real numb in my face and neck when I don't stay hydrated. I wasn't told of a nerve in the neck that you mention but wouldn't discount that. I have a spot under my right cheek bone that stays numb but it's just above the scar line so I figure it's from the scar tissue inside my mouth.
I have neuropathy due to chemo but doesn't seem to be in the face/neck area, it's more in feet, arms and hands. Do your best to stay hydrated and possibly this will help. Best wishes to you.

Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****


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