| | Joined: Oct 2012 Posts: 7 "OCF Canuck" Member | OP  "OCF Canuck" Member
Joined: Oct 2012 Posts: 7 | Hello everyone!
I went to my dentist today and he was very concerned and sent me right to the oral surgon. the oral sergon said he cant tell me anything for sure, but wanted me to start with a prescripton that he hopes will take it away. If it does not he is going to do the biopsy Nov. 5th - wasn't the worst news, nor the best!! | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Keepsake where in Canada are you?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2012 Posts: 7 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Oct 2012 Posts: 7 | I live on prince Edward Island Cheryl. | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Oh lord!!! A spud islander. My aunt and uncle live in souris, and I have a home in fortune (live in TO) I am also related to a whole bunch of people there. Macphee, mckinnons, MacDonald, Longaphie  It's such a small place and people there are great so you should get personalized attention from your drs. At least - my only concern is if it I cancer ( praying it's not ) that you might want to see treatment in Halifax or somewhere else - not sure how much OC they see. Let us know what happens - and do some research while waiting - see who's considered best in his/ her field in your neck of the woods. Hugs!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Keepsake - Sounds like your dentist and oral surgeon are on top of things with you. Sure hope it turns out to be nothing, but whatever it is, it's good you are taking good, positive steps.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Oct 2012 Posts: 7 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Oct 2012 Posts: 7 | Oh Cheryl that's funny. Small world, i know loads of poeple with those last names so it is possible that we know some common islanders. I had a very rough night last night. I was in so much pain that I couldn't sleep all night, so I went to the hospital today, my pulse was 185!!!!! (normally 85) and i was having trouble breathing. I was hooked up to all the heart machines, and everytime i would dose off, my lips would go blue and the O2 sats machine would alarm.On top all that Turns out that i don't have the infection that the oral surgeon said he thought i might, beacuse the meds only made the pain worse!!The doctor i seen today at the hospital told me to stop taking it, and gave me a steroid cream for the pain. He also made me an appointment with the ENT (turns out we do have one) and the ENT is going to do the biopsy at my appointment, so fingers crossed i'll know whats going on soon!! | | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Not a good way to get there, but sounds like you are now on the right track! Keep us posted!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Okay that's odd the reaction you had sounds like an allergy to the meds!!! Definitely have it checked - biopsied, and silo glad you're being seen by an ENT hugs and luck to you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | | "OCF Canuck" Supporting Member (50+ posts)
Joined: Oct 2011 Posts: 67 | Yes, please let us know how it turns out! I was prescribed steroids after a neg biopsy, but all they did was make me drool. So much so, that I had to stuff paper towels in my mouth to try and control it. I sure hope the steroids work for you, just saying that they sure didn't for me. If you start to drool like crazy - go to emerg again. Best of hope for you. Again - please let us know what happens 
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation.
Leukoplakia Bx Feb 2011 - Lichen Planus.
Bx May 2011 - Hyperplasia. Same sample retested as SCC.
June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia.
T3N1M0 Stage IV.
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