| Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | thanks, fyi, they cut the last to rads out, will only do 33. still 5 to go.
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Why did they do that? Did they explain?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | no, but they did it 2 weeks ago, he looked at my throat and nose and said he was cutting the last 2 off. they would have been a separate week, monday and a tuesday. He said, we are getting it all.
Last edited by MickeyW; 10-14-2012 06:32 AM.
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | That's great, Mickey. My (non-professional) guess is that you are benefiting from the small size of the primary tumor, the surgery to remove it and its HPV status. Just think - you can happily skip (well, walk, anyway) out of RADS on Friday. Interestingly, your diagnosis profile is the same as my husband's - negative needle biopsy and initial CT scan. Glad they kept investigating and you are now on the road to good health. Maria
Last edited by Maria; 10-14-2012 07:46 AM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2012 Posts: 111 | Micky/David, the reason may be similar to me last year. I will try to explain. Last November I had some very difficult to understand discussions with my RO because she wanted to cut out my third induction chemo because it would mean that my radiotherapy would start over the Xmas period when I would only get a short week of rads and she wanted me to start well before Xmas. I found this very disconcerting that I was going to get less chemo (in retrospect I would have really suffered with an extra round of TPF) and I couldn't see what the difference would be because I would still be getting rads over the holiday period, though twice a day for 2 days to make up for the public holidays. I was very suspicious that this had something to do with cuts to the health service and shortage of staff! Eventually she explained in detail, which I didn't fully understand, but the gist is that radiotherapy is most effective when given everyday. Weekends off are acceptable to allow the patient to recover, but adding in extra days off reduces the effectiveness. Therefore as in Micky's 2 days at the end, she didn't want me starting with public holidays causing big gaps at the beginning. Someone who understands the physics of radiation may be able to explain this better! Sally
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol. 10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12. 12/07/11 RIG. RIG removed 05/05/12. 4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Mickey,
So are you saying that you won't be getting the last 2 but they will have made up for that by increasing your doses before then? Have you asked what total amount of radiation you will be getting without these last 2 days? Just curious.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | 66 greys is total. I had a fever Sunday and call the MO office and it was 100.5, they said take advil/tylenol and if it goes down and does not spike then I should be ok because I have a MO appointment Monday afternoon. (I choked on a pill Saturday and thought I may have asphyxiated pneumonia) I went Rad Monday and the doc there checked me out and he said prob. not pneumonia, prob from sores and blisters in mouth, slight infection. I told him the MO was going to do x-ray. RO was correct, the MO did x-ray and not pneumonia, also the MO said since I had only 4 RAD left and I have already done 6 chemos, he said I didn't need the last chemo. (I was feeling very dehydrated and I really felt bad). So I said OK!. He suggested I stay for a bag of fluids, but I wanted to go home a sleep, so I said no, and when home and put almost a liter of water in my stomach tube and within about 10mins felt a whole lot better. Now I can barley swallow water, but I am doing it, and putting water in my tube a lot. Don't know how I would get anything in without the tube.
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | Guess I need to change my signature to 33 IMRT and 6 Chemo ?
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | So, did you not do the last rads and the last chemo?
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | I think there are quite a few of us who do not get in that last Cisplatin dose. I was supposed to have 3 large doses at 3 week intervals, but they cancelled the last one - THANK GOD!! I did all the prescribed radiation treatments.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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