| Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Ok...I don't know, but Kevin's card he got from his RO after tx said 60 IMRT at 125gy each for a total of 7500. He went twice a day for 30 days. I thought that was a lot...now I know it was. Does this mean he wins the gold??? One year PET tomorrow guys. Good thoughts appreciated!!
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Sorry: sounds like it's a typo by a sloppy writing RO who wrote cGY instead of GY. It should have said he had 7500 cGy , which used to be called 7500 rads, which is 75 GY. If he really had 125 GY 60 times, he'd be dead especially with IMRT; physical fact that it's impossible to survive 7,500 GY, or 75,000 rads. Shame on the RO for not correctly giving the individual doses as 125cGy. Another typo the RO could have made was to leave out the period: if Kevin had 1.25GY 60x, that's very probable and normal, and adds up to 75GY.
Last edited by Charm2017; 10-08-2012 05:06 PM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Bummer. Thought we won...Man...we never win anything.... Looked in chart notes, yup cGY. Smart guy!! Take all the fun outta things!
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | KATHY
Trust me, this is NOT a contest anyone wants to win. It's tumor humor but suits my mood right now. But keep those GY scores coming. Hint: Very unlikely anyone who has not joined the recurrence club is going to be in the running. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Trust me, it's not fun being the leader. It means that I have fewer and fewer options moving forward.
I do think this is an interesting exercise. It gives us all a look at the changing face of what is an acceptable lifetime radiation dosage.
Conventional thinking not too long ago was that you could only get radiation once (70 GY) and that was it. As targeting software and methodologies have advanced, so too have additional options for those of us with recurrences.
So keep those numbers coming, I�m curious to see what others have been through.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | does sitting out in the Aussie sun drinking coffee count? WITHOUT SUNSCREEN OR A HAT?
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | [quote=klo]does sitting out in the Aussie sun drinking coffee count? WITHOUT SUNSCREEN OR A HAT?[/quote] Karen -- What? No "slip, slap, slop"? (Is that campaign still running? I remember it from a visit to Perth to see friends in the early '90s.)
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | I was at our CCC today to visit my MO, and while there I asked the RO's assistant how many GY's I had received during the two sets of radiation. Turns out my total is 124 from 62 rad tx.
So, for all those who are told that they have had their lifetime dose of radiation, point to Kelly and Charm and I. The three are probably not allowed in the same room together as the glow might disrupt satellite transmissions, but we are HERE.
Not that I am a COMPETITIVE person or anything, but I do believe that gives me the Bronze Medal?? LOL
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | Charm, I know. I was trying to be humorous too!! Gotta keep it light to get through the worry and with the PET the next day there was stress. All is well though. The PET was clear. I am hoping we don't ever have to be in close competition with the 3 of you, but if we do I pray we will face it with as much courage and strength as you have had. Thanks for always being here, Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Okay Coming around the curve, we find the front runners are
Kelly211 with 190 GY Charm2017 with 137 GY Pandora99 with 125 GY
Looks like Medals for all so far in the Radiation Olympics .
BUT I've decided to keep this race open a little while longer so that the infrequent posters and lurkers can still enter. Plus this thread is serving an important purpose: encouraging posters who already have had radiation treatment to go back to their doctors and get their actual GY count. Just be sure that's its apple and oranges. If your doctor' records only has RADS, or cGY, we can convert it here for you into GY. Radiation doses for cancer treatment are measured in a unit called a gray (Gy), which is a measure of the amount of radiation energy absorbed by 1 kilogram of human tissue. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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