| | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | It's very hard work Walter, we know that. Sometimes I know we would read these suggestions and say, "they have no idea how bad this is", but that is the beauty of this site...we DO know and we got through it by forcing ourselves (in my case forcing my husband!) to do it. We know you don't want to, neither did we, but this is your life and you gotta make the most of this chance. David's idea is great. The meds can help make it happen.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: May 2012 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2012 Posts: 31 | 2500 sounds like a pretty big/huge amount. The bottle of Boost was 360. It was Boost Plus Vanilla - pretty good taste. The other Boost (no Plus) was 240.
2500/360=7.
2500/560=4.5
I'll do a search to see where I can find the 560.
I appreciate the info and the *push*!
Squamous Cell Carcinoma base of tongue
Erbitux 12 wks
IMRT Radiation ended 8/7/12
MRI Cancer live 10/3/12
3 rounds Chemo (Cisplatin, 5FU, ??)
Brachytherapy 7days ended 1/28/13
PET SCAN 4/19/13
70 yr old 8/20/12
Walt
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Walter, you can buy the Boost by the case righ thru the OCF Amazon link. This helps OCF by giving us back 6% of any purchases. By using this link for any Amazon shopping it will really make a difference! OCF is a very small non profit that works on a shoestring budget so every penny counts.
The Amazon link is located on the main OCF forum pages. Its the green box towards the top right. Just click on that and OCF's info will be there for your Amazon Boost VHC purchase.
Yes the word is PUSH. You must push yourself. After what you have gone thru your body needs those calories to rebuild itself. Same with the protein, high protein will help with your recovery and healing. I know it sounds like way too much but its not. When I was recovering I would make huge chocolate peanut butter milkshakes which were around 2000 calories each. Some days I would drink 3 of them. I never gained an ounce. Thats how hard my body was fighting to bounce back, it was burning up calories at least 3 times my normal rate. Every single day you are one step closer to being well so help your body by pushing to drink as much as possible and gettign those calories in.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Good luck walter. take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2012 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2012 Posts: 31 | 6% is def worth-it.
P-U-S-H, I'll keep remembering.
Going to search for weight-gain smoothies.
Last edited by waltersaegir; 10-03-2012 10:26 AM.
Squamous Cell Carcinoma base of tongue
Erbitux 12 wks
IMRT Radiation ended 8/7/12
MRI Cancer live 10/3/12
3 rounds Chemo (Cisplatin, 5FU, ??)
Brachytherapy 7days ended 1/28/13
PET SCAN 4/19/13
70 yr old 8/20/12
Walt
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | You can always try my chocolate peanut butter milkshakes. They are loaded with calories as I use whole milk and regular ice cream. All ingredients are approximate.... Chocolate Peanut Butter Milk Shake 3 - 4 cups of chocolate ice cream 1 - 2 cups of whole milk 2 tablespoons peanut butter 1/4 cup chocolate syrup 1 scoop of Carnation Dry Instant Breakfast Powder 1 scoop of whey protein powder Blend on high for several minutes until everything is very smooth and creamy. Texture plays a big role in what a person can or cant handle so you want to blend this for a long time. I try to shoot for a consistency of what paint looks like when you pour it out of the gallon container. (Sorry for the weird comparison but thats all I could think of that was very smooth.) If its too thick add more milk, too thin add more ice cream. Drink one of these every single day and also do your 6 cans of boost and you will be ok. Dont forget to drink water too. Give it a try, it cant hurt
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hi, Walt
my husband used a scoop of Now Sports Natural Vanilla Whey protein in each of his shakes - along with a packet or two of Carnation Breakfast Essentials. Mixing in full fat vanilla ice cream also worked for him.
Good luck and fingers crossed for you.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | All those yummy shakes are fine when you have taste but most finishing Tx are pretty much tasteless so why bother mixing all those ingrediants when you can just pop a top and down 560 nutritionally balanced cals in 1 minute? Post Tx I mixed my VHC half n half with whole mike and drank one with each meal.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2012 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2012 Posts: 31 | Well, they saw something in the MRI that was suspicious in the original tumor area, though be it smaller.
ENT Doctor said that he couldn't tell if it was dead cancer cells or the small possibility of the start of recurrence.
So, he is scheduling me for a biopsy.
Squamous Cell Carcinoma base of tongue
Erbitux 12 wks
IMRT Radiation ended 8/7/12
MRI Cancer live 10/3/12
3 rounds Chemo (Cisplatin, 5FU, ??)
Brachytherapy 7days ended 1/28/13
PET SCAN 4/19/13
70 yr old 8/20/12
Walt
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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